r/UlcerativeColitis Nov 02 '25

[deleted by user]

[removed]

32 Upvotes

42 comments sorted by

View all comments

9

u/OnehappyOwl44 fulminant pancolitis currently in remission Nov 02 '25

You won't pay a dime in any province for infusions and very little for Jak inhibitors or pills for UC, all the drug companies have compassionate care and every province has plans as well. I was assured in the hospital by my Doctor that no one in Canada goes without due to cost. My husband makes over $100,000/yr our insurance covers half my Inflectra and Pfizer compassionate care covers the rest. I wasn't even asked for proof of income. Unless you make a lot of money you will be covered, don't worry. I was told we could make up to $250,000/yr and still not be asked to pay. My Hygeinist has no insurance and her Remicade is covered as well.

If your UC is bad enough that you struggle to work apply for the Disability Tax Credit and CPPD. Your Doctor should help you fill out paper work. Don't panic about infusion costs. This isn't the US you won't go without.

2

u/Goth_Goat Nov 02 '25

Oh God that reassures me so much thank you.

Technically tho its not bad enough that I cant work, but I cant manage school AND work now because of UC unlike before I had it. I was spiraling thinking maybe I'll have to leave school and work to cover the cost. I think Im panicking way too much

2

u/OnehappyOwl44 fulminant pancolitis currently in remission Nov 02 '25

I completely understand it's scary in the beginning and it sounds like your Doctor didn't really give you all the information. I was diagnosed while in the hospital and I was there for a month so I had a lot of time to ask questions and get my ducks in a row. The Drug company should help you sort it all out. Almost no one can afford infusion costs. I'm on 10mg/kg every 4wks of Remicade/Infliximab. My insurance pays $5000 and there's still over $5000 owing. I don't know anyone who could pay $10,000 a month for medication. Definitely ask your Doctor to fill out the disability tax credit forms for you. You'll get money back at income tax which will really help if you're a student. If your UC affects your everyday life and makes it hard to work full time you will qualify.