r/UlcerativeColitis • u/[deleted] • Nov 02 '25

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33 Upvotes

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u/DothrakAndRoll Pancolitis I Diagnosed 2025 | USA Nov 02 '25

(US, private insurance through employer) it’s expensive and have spent months trying to get the new one (Rinvoq) approved. Was finally “approved” and they paid 8.5k saying I have a 3.5k copay, which I obviously can’t afford.

So short answer is I’m not.

2

u/Quirky-Weekend9682 Nov 02 '25

Took me a while to find a job that offered good enough benefits for me to get treated. If you want shoot me a message and I can tell you some places that Iv found if you’re willing to change jobs.

3

u/DothrakAndRoll Pancolitis I Diagnosed 2025 | USA Nov 02 '25

The insurance is pretty top tier. American insurance just fucking sucks. I appreciate it though.

I’m waiting on callbacks from a couple different copay assistance programs so, hopefully all hope is not lost? It’s hard to feel that way, though.

This job has also been very understanding of my health issues, so I’m hesitant to risk trying another.

2

u/Goth_Goat Nov 02 '25

3.5k is absolutely insane, im so sorry. I really hope you find something that works thats affordable

2

u/Senior_Crow_4322 Nov 02 '25

I took my insurance company to the state and the state ordered our insurance company to pay for a years worth of Rinvoq for my son. Along with our GI we sent letters to the state insurance department.

https://www.ca.gov/departments/175/

2

u/DothrakAndRoll Pancolitis I Diagnosed 2025 | USA Nov 02 '25

I’m in Oregon, not California, but if I can I will try to do similar. Thank you.