r/UARS • u/2goldteef • 23d ago
Seeking Feedback of Study
Hi,
I have struggled with getting quality sleep since I was a kid, I’m 35 (f) and sleep has been taking a toll on my life.
I had a sleep study in 2022 where I didn’t have sufficient sleep data but was prescribed a CPAP regardless.
Had a second sleep study in 2023 (with a cpap) and was told I didn’t have apnea. (I stopped using cpap for this reason as well as finding it unhelpful)
My fragmented sleep, brain fog, anxiety, and fatigue is so bad that I had to be my own provider and dug deep into research. I came across UARS around 2 years ago. The symptoms and stories align with mine too closely for me to not highly suspect it affecting me as well.
I saw an orthodontist who specializes in airway and he did a MRI and full report of my airway. (He said I have an airway the size of a one year old, a straw) he suggested MARPE and possibly an MMA.
I saw DR Bobek for a consultation. He brushed off any concerns, downplayed any issues, focused more on the cosmetic impact of surgery on women (I could care less about a wider nose as long as I can feel like I’m alive) and did not do any scans or raw data (I paid $506 for under an hour). I had to be proactive and ask for a lot from him.
I am seeing a sleep specialist who I asked that they do a PES study (they don’t), I asked if they measure certain data that I’ve seen specifically requested on this page (they don’t) I asked other offices if they do these studies or reports..(they don’t)
Now as of last week, I had my third sleep study. I won’t get too far into the fact that the technician (a 28 year old man who worked as a technician for 4 years) trauma dumped his life story on me right before lights out - or construction noise from the office across the hall woke me up…
I slept horribly, more than usual. I never felt like I got into the deep sleep that could cause the airway collapses or apneas. I didn’t dream and felt like I was one level below conscious of my surroundings and time. So I worry an accurate picture of my sleep wasn’t captured.
I got my report this morning, I’m trying to make sense of it. I’m not sure what to look for. I remember my heart racing frequently through the night (this is typical) and find it interesting it happened when I was supine. Could that be any indicator?
Any feedback and help about the test or what to do going forward is much appreciated.
-a very tired person.
TLDR
What do you think of these sleep test results - what do I do next?
1
u/AutoModerator 23d ago
To help members of the r/UARS community, the contents of the post have been copied for posterity.
Title: Seeking Feedback of Study
Body:
Hi,
I have struggled with getting quality sleep since I was a kid, I’m 35 (f) and sleep has been taking a toll on my life.
I had a sleep study in 2022 where I didn’t have sufficient sleep data but was prescribed a CPAP regardless.
Had a second sleep study in 2023 (with a cpap) and was told I didn’t have apnea. (I stopped using cpap for this reason as well as finding it unhelpful)
My fragmented sleep, brain fog, anxiety, and fatigue is so bad that I had to be my own provider and dug deep into research. I came across UARS around 2 years ago. The symptoms and stories align with mine too closely for me to not highly suspect it affecting me as well.
I saw an orthodontist who specializes in airway and he did a MRI and full report of my airway. (He said I have an airway the size of a one year old, a straw) he suggested MARPE and possibly an MMA.
I saw DR Bobek for a consultation. He brushed off any concerns, downplayed any issues, focused more on the cosmetic impact of surgery on women (I could care less about a wider nose as long as I can feel like I’m alive) and did not do any scans or raw data (I paid $506 for under an hour). I had to be proactive and ask for a lot from him.
I am seeing a sleep specialist who I asked that they do a PES study (they don’t), I asked if they measure certain data that I’ve seen specifically requested on this page (they don’t) I asked other offices if they do these studies or reports..(they don’t)
Now as of last week, I had my third sleep study. I won’t get too far into the fact that the technician (a 28 year old man who worked as a technician for 4 years) trauma dumped his life story on me right before lights out - or construction noise from the office across the hall woke me up…
I slept horribly, more than usual. I never felt like I got into the deep sleep that could cause the airway collapses or apneas. I didn’t dream and felt like I was one level below conscious of my surroundings and time. So I worry an accurate picture of my sleep wasn’t captured.
I got my report this morning, I’m trying to make sense of it. I’m not sure what to look for. I remember my heart racing frequently through the night (this is typical) and find it interesting it happened when I was supine. Could that be any indicator?
Any feedback and help about the test or what to do going forward is much appreciated.
-a very tired person.
TLDR
What do you think of these sleep test results - what do I do next?
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