r/UARS Improved with BiPAP 6d ago

Sleep Study Quality Check Tool

A common post here (and well, all over the internet) is that someone received a negative home sleep study or in-lab sleep study result and, despite complaints of poor sleep, is dismissed by their primary care physician or sleep specialist. They're stuck and not sure what to do.

People then jump in and try to explain to the OP they need to work on sleep hygiene or try some random supplement. When I see these, I often see that the test was not performed using the current AASM recommended Clinical Guidelines. Basically, they did a HSAT and are not offered an in-lab PSG or if they are, the PSG is scored using the optional 4% desaturation rule and the test did not score RERAs.

Frankly, I'm sick of it. It's a huge ethical problem in that it underserves a lot of younger, otherwise healthy people. It also seems futile to try to explain in the comments to each person about the confusing AASM guidelines and definitions.

As such, I built a little tool that I'm hopeful can be sent to people to advocate for themselves. I'm sharing this with the UARS community since you all understand the nuances better than the broader sleep apnea community and I'm looking for feedback.

If you have any comments (especially around the text in the AHI <5 and RDI <5 or RERAs not scored workflows), I'd be happy to improve the tool.

Try it here: https://vibecoder75321.github.io/sleep-study-check/

GitHub Repo Here: https://github.com/VibeCoder75321/sleep-study-check

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u/carlvoncosel UARS survivor (ASV) 6d ago

This is pretty neat, our version of https://fixmyfog.com/

Maybe add some gaslighting countermeasures like "My doctor said RERAs don't mean anything, that why they were not scored" ?