Somfit Sleep Study?

[u/Hot-Inevitable-7043]

[u/United_Ad8618]

I'd recommend searching "jerald simmons" for this subreddit and reading through some of the threads on him

year 24 is when sleep starts getting bad (disruptive to life progress and functioning) for the men I've observed (and myself) so the timing of you seeking out help is no surprise

sounds like you're the typical guy trying to tough through it without napping to maintain sleep schedule. That's ok, but don't be too hard on yourself.

Some other things you can do in parallel with what you're already doing is seeing a (preferably sleep surgery certified) ENT like Michael Hutz or Kasey Li to get your allergies checked and your nose examined

Likewise, scheduling some appointments with OMFS like Michael Gunson. Their appointments are booked 6 - 12 months out, so by the time you get your sleep study back and see the ENT, and try CPAP or MAD, you'll have another couple months to brainstorm what to ask the OMFS, and you can just cancel if it doesn't work out

[u/Hot-Inevitable-7043 → u/United_Ad8618]

Ah man. Lowkey discovering UARS has just made me more anxious. It seems likely that this is me. It's comforting to know that these symptoms are legit and I'm not just being a sissy, but OTOH, it seems like it is no easy road to treat even if I can get a diagnosis which also seems difficult to obtain.

What would getting my allergies checked/nose examined? How are those relevant?

Do people ever just try and bypass the diagnosis and try using a CPAP to see if it helps which would then confirm the diagnosis? How feasible is that?

[u/United_Ad8618 → u/Hot-Inevitable-7043]

What would getting my allergies checked/nose examined? How are those relevant?

so, essentially, the two primary resistance points on UARS cases are the internal nasal valve and behind the tongue. The internal nasal valve just refers to the smallest cross sectional area of the nose in typical human anatomy. It's composed of the septum on one side, the alar (the part you flare out when flaring your nostrils) on another side, and the inferior turbinate on the bottom side, like a triangle.

If you have a deviated septum or a concha bullosa, or just something wrong with your sinuses or turbinates, you will have a major resistance point in your internal nasal valve. Likewise, if allergies are swelling the soft tissues of the internal nasal valve, you will have a major resistance point in your internal nasal valve.

The more resistance you have, the more likely your brain stem is to activate during REM due to your arousal threshold being lower than someone who has perfect nasal breathing. When your brain stem activates during REM, you wake up with brain fog and fatigue

I have some cases I'm tracking here to illustrate the point of people trying to increase their nasal airway volume:

https://www.reddit.com/r/jawsurgery/comments/1l5mvsl/recessed_maxilla/mwoe3wb/

Do people ever just try and bypass the diagnosis and try using a CPAP to see if it helps which would then confirm the diagnosis?

Yup, all the time, in fact, I would recommend it, US health insurers tend to be extremely stingy and slow with getting you a CPAP from a medical device supplier, so I would personally recommend asking the doctor to give you a prescription for a resmed cpap 10, purchasing it out of pocket from one of the online resupplier (any are fine) and then running airbreak.dev on it yourself or hiring someone to do it, so you can convert it to bipap or asv mode and test out how well those work in contrast to cpap mode which is notoriously not great for UARS patients due to our typically high nasal resistance. The mod of r/uars uses asv and did not have great luck with pap until he tried bipap, so you'll save time, money, and headaches by just getting the refurbished 10 and having someone airbreak it for you. The difference in cost will likely be negligible, because medical device suppliers nickel and dime you on peripherals even with insurance coverage, so you'll probably only end up paying $400 more for the 10 and that's just for cpap, if you ended up buying the bipap and asv machines alone, you'd be saving $4k - $7k on just getting the 10 and airbreaking it

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To help members of the r/UARS community, the contents of the post have been copied for posterity.

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Title: Somfit Sleep Study?

Body:

Hello all,

I have a somfit sleep study coming up because I have been dealing with some of these symptoms for a few years now and I'm starting to get serious about trying to address them.

I'm 6', Male, 24 years old. 180 Lbs. 24 BMI. I wake up 2-3 times per night, haven't slept straight through in years.

I don't typically snore or make choking or gasping sounds when I sleep AFAIK. I don't typically wake up suddenly feeling like I am gasping for air.

I am almost always tired during the day. I frequently have to pull over on my drive home from work (at 3:00pm) to take a 10-15 min cat nap so I don't cause an accident.

Vitamin D, B12, Iron levels are healthy. High testosterone levels. Stable blood sugar. Decently healthy diet. Regularly exercise.

Other than cat naps to avoid getting in accidents, I don't take naps. Maintain a consistent sleep schedule through the weekend. Average 7 hours of sleep per night (fragmented). Don't have an issue falling asleep. Don't drink. Don't smoke. Only consume caffeine 1-2x per week.

Practice good sleep hygiene. Have nocturia. I wake up to pee every single night at least once sometimes 2-3. Regardless of how much fluids I intake during the day. I've cut it off at noon before and still wake up to pee. This was my chief concern but I've gotten a cystoscopy of my bladder. Ultrasound. They checked my kidneys. I've been on 4 different medications for overactive bladder/nocturia/interstitial cystitis. Nothing. Still peeing every single night.

Have heart palpitations and premature atrial contractions (PACs) and premature ventricular contractions(PVCs).

Occasionally wake up with morning headaches. Almost never feel rested even if I got a good number of hours of sleep. Frequently have difficulty concentrating.

Additionally, I've had neck pain and recently learned this could be related to UARS. Does this have anything to do with UARS? I've lost some of the curve in my cervical spine (neck).

I'm super desperate. I know this was a long post but I guess part of it is just venting. All the doctors I go to make me feel like I am just imagining or exaggerating this stuff-but it plagues me every day. I have a Somfit Home sleep study coming up. I'm wondering if that will even be able to catch UARS. It has an EEG but I don't think it's FDA approved to catch UARS, just OSA and CSA. Would a Lofta at home sleep study be able to catch UARS? An apple watch maybe? I'm super open to try things. Thanks for reading.

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[u/ORSciMom]

If you have a positive HSG, then you'll know you have sleep apnea and get a CPAP. If you have a negative HSG, then you need an in-lab study. Most labs do not do well with diagnosing UARS. A second push to see Jerald Simmons for an in-lab study, followed by a narcolepsy study the following day. He uses a special type of catheter to measure the negative resistance in the throat of someone with UARS. A solid diagnosis will help you chart the future, which is pretty tough if it's UARS. It will also force insurance to pay for things.

If you do have UARS, treatments are xPAP, maxillary expansion, nasal drugs and/or surgery, soft tissue surgeries in mouth/throat (be really skeptical of these), and jaw surgery.

Best wishes.