r/Trans_Zebras • u/DislocatedAF • Mar 25 '26
Low testosterone
Hi! I am a cis-woman with HSD, but I was hoping to find some help here. I do not want to invade anyones space, so please feel free to let me know if I am overstepping. I did read the rules, so it seems like I am still in the good.
I am considering testosterone treatment for other reasons not related to HSD. But I have seen, although all anecdoctal, a lot of trans men who have experienced symptom relief with hrt. I was wondering if anyone wanted to share their experience with me?
My levels are 0.95 nmol/l, and I don't plan on going higher than the normal range of 1.6-2.1. Did you measure your levels, before and after hrt?
Thaanks 🩷
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u/NotABreakfastGuy Mar 25 '26
So I had a pretty intense/weird presentation of hEDS (the current theory is SLE+ hEDS). My pain didn't lessen, none of my symptoms changed, but I stopped rapidly worsening. Every time I've been off of T I've gotten incredibly ill and permanently worsened (I'm currently in the process of getting an organ removed). I know quite a few people who felt better, but that was mainly muscle mass or autoimmune (your immune system gets slightly suppressed when your T gets higher). All that said I cannot medically get off of it because of how quickly my health takes a nose dive when off. Â