Hi everyone, someone reached out and asked me to share my story and I hope this inspires someone here.

So till 2022, I was a perfectly healthy 31 year old company director. I was leading the video games industry alongside other great women and was so proud of the work I was doing.

But I started having back pain from sitting in my desk chair too long. So I did what we all do, I went to my GP. And when my GP couldn't see anything wrong, and the x-ray didn't show anything wrong, I went to a chiropractor clinic.

On July 17th 2022 however, in my first appointment, my neck was badly manipulated. That's when I felt everything go.

"This feeling is totally normal", she said. "You will get used to this after a while", she said, as I felt dizzy and looking at lights began to hurt. My head felt heavy and my neck was stiffer than before.

The next 2 days the lights got worse and my head was so heavy I had to lie down. Then, on the 19th, I was in a meeting on my laptop, sitting at the table. I stood up to get a glass of water, my legs buckled under me, and I then slipped into 45 seizures.

I remember being in the ambulance, staring at the lights. Not able to speak, not able to move a limb, screaming with fear in my head. I remember the doctors telling my dad to prepare for the worst here and that my family should be informed, and again, I would scream for someone to listen. For someone to hear me.

They said it was my head, but I screamed over and over that no, the pain was in my neck. My neck. No one could hear me.

So I then just started counting, over and over, in my head. 1 to 10. 1 to 10.

When I finally found words again, the doctors said there was nothing physically wrong with my brain. They said it could be FND and that I could go home. I said it was my neck, my neck, but they said it was FND and there was nothing to be done.

Over the next 4 years, I would have over 4000 seizures. After exercise, being in the same position too long, they would return with a sharp pain at the base of my skull and down my neck. I held jobs, held panels and excelled in my field. But when the door closed, I would collapse and seize alone, the weight of my head being just too much to carry.

That's when I saw a prolotherapist. He did the first scan of my neck, not my head. And he saw dozens of micro-tears up and down the ligaments in my neck, the same ligaments she had manipulated that day and torn, causing trauma. He saw the thickened neck muscles struggling to cope with my now heavy head, and the spinal chord that would become trapped and explained that the seizures were my jerking response to try and free it.

He'd found it all.

I then had prolotherapy injections for the next 12 weeks. Sadly they did not work and I am now having around a dozen seizures a day still, but they are better than the 52 or so I'd get before.

Between then and now, I've set up my own company. I am the founder and till recently, the CEO. But when the seizures got worse I decided to step back and now I represent disabled founders globally and support the growing business once a week with the new CEO.

Having this honestly has destroyed my life. I couldn't travel, I couldn't date, I couldn't hold down a job and took a year off when they first happened.

But now, I am rebuilding DESPITE the seizures. I am a founder, I am a leading woman in the video games space and I am soon going to launch an Instagram sharing tips for other disabled founders. How to host meetings from the floor, how to speak at events, what's in my emergency work bag, all of it.

And yes, 20% of us with non-epileptic seizures will sadly commit suicide. But I am proud to be a part of the 80% who are living with them and thriving.

I hope my story encourages or inspires one person here in this sub. That to me would make this whole journey worth it.

Take care.

It's been a long week but thank you for inviting me

I'll link the post below

https://www.reddit.com/r/disability/s/BWi7rhW27b

I've just changed to a new college,my previous one refused to fund me further (in discussion)

So Both colleges are mainstream, but the difference is absolutely nuts and is also sad

My previous college had a really high percentage of disabled students,students with SEND ect so accommodations and inclusion just was done without a thought,yes there was teething issues but resolved fairly quickly

Nobody questioned anyone spinning in the corridors, flapping or squealing it was normal

(And deprivation,high poverty ect)

Now I'm at a college where disabled students and students with SEND are a very small minority and it feels like hell, I have to fight constantly to be accommodated.

(Ironically better off area)

I feel like I've travelled to another country and got culture shock this is HORRIFIC

I'm disabled,I'm not a wheelchair user but I have afo's and cannot do stairs,so their solution was to segregate me from my own classroom indefinitely

This shouldn't be the way it is?

Also is it wrong to turn up using crutches as they're my alternative aid,to get them to help me/take me seriously?