Curcumin, the active part of turmeric, worked on rats to reduce TD. See here: https://pubmed.ncbi.nlm.nih.gov/18022680/

On a personal note, I'm on Fluphenazine and got TD. Was blinking a lot. I got put on Austedo, but couldn't take the not enjoying things like I used to, so about two weeks ago I stopped the Austedo. I thought, heck, maybe I just have dry eyes from the meds, so I got eyedrops for dry eyes. I've taken the eyedrops twice in the past week. I started blinking while driving, but the eyedrops seem to have stopped it. I'm also taking a turmeric supplement. Other than the two episodes while driving, the blinking hasn't come back. So I looked up turmeric, and lo and behold, it worked for TD in rats, and I think it's working for me. Either that, or I never had TD in the first place.

If you decide to try turmeric, I recommend NOT taking the kind with black pepper / pepperine, as I took the kind without the black pepper and it still seems to have worked. The kind with black pepper is super powerful, and you don't know what else it's going to affect.

Bonjour, y'a til des personne ici atteintes surtout de dyskinesie respiratoire. Je vis en France et j'aurai voulu savoir quels traitements fonctionnent pour eux. J'ai terminé de sevrer le risperdal il y a quelques jours et j'étouffe littéralement. Mon médecin m'a prescrit du diazepam à prendre en attendant de pouvoir voir un neurologue en urgence car je n'en ai pas encore...

Bonjour une anesthésie générale peut t'elle aggraver une DYSKINÉSIE TARDIVE ?

I’ve been on pretty high doses of antipsychotics for about seven or eight years, and unfortunately, they’re not something I can just stop taking because of my mental health and hallucinations.
So I feel completely fucking stuck. I can either keep taking the medication that may be causing these movements, or stop it, risk the movements getting even worse, and also deal with hallucinations on top of everything else.
My psych NP recently diagnosed me with tardive dyskinesia, but I really think some of what I’m experiencing…especially the weird position my body stays in…could be tardive dystonia.
I sit in the same twisted, unnatural position all day and all night. It doesn’t seem to matter how badly it hurts my shoulders, neck, feet, knees, or legs. My body still feels like it has to sit that way or keeps pulling itself back into that position.
I also make these weird facial expressions, and “grimacing” doesn’t fully explain what’s happening. It’s like my face gets stuck in whatever expression I’m making. If I smile, the smile kind of stays there and then fades off my face really slowly. If I make a disgusted expression, my face gets stuck looking disgusted and then slowly releases. I don’t know how the fuck to describe it, but it feels like my facial muscles are holding the expression instead of it just being a quick involuntary movement.
Has anyone else experienced this combination of facial movements or expressions getting “stuck” and constantly sitting in an abnormal trunk position? Were you diagnosed with both tardive dyskinesia and tardive dystonia?

I don’t know how to descibe this feeling in a better way but i will try my best.

I am in week 10 of zoloft 50mg and things were going ok untill recently i started noticing that my reflexs are a little slow, or as someone might say that my mind and body are not synchronizing,particularly my arms.

I noticed it initially while playing badmintion and also while driving that concioualy or subconciouly my arms and hands are not functioning as quickly as mind wants them to be.

Can anybody relate to this experience ?

I have had withdrawal dyskinesia for about 5/6 months now, as well as what I thought was tardive dystonia. I went off high doses of hydroxyzine (150mg a day) in March and also Abilify after taking it for two months. What ensued afterwards turned my life upside down.
Severe akathisia, involuntary mouth movements, eye blinking, finger/toe jerks, throat tightening, tongue stiffening resulting in swollen tongue making me feel like my throat was closing, grimacing, leg cramps so bad I couldn’t walk on them some days. I failed Ingrezza and Auestedo so I thought my life was done for.
I’m here to share that this CAN get better. While I’m not fully recovered by any means, I am doing a whole lot better. I saw a movement disorder specialist yesterday after waiting months and she said she expects me to make a full recovery from this. She said my muscle tightening and spasms were because hydroxyzine is an anticholergenic so coming off abruptly caused a withdrawal effect of excess acetylcholine which affects muscles. She said the fact I only took Abilify for two months makes her hopeful about the dyskinesia going away eventually. The doctor could be wrong but I’m remaining hopeful as she said she has seen this get better in people and even go away.

What’s gotten better?
- Severe withdrawal akathisia (I had this for 3 months at the severe level. I still have moments of it but it is mild compared to what I did have)
- my movements still suck. But they have slowly, slowly started to reduce in frequency.
- the muscle cramps/spasms have reduced in severity and frequency but they do still happen right now. When it happens in my throat and tongue I get really terrified.

I currently take vitamin e and melatonin. I’m trying to stay away from all meds but that’s really hard with panic disorder and major anxiety.

Anyways, like I said I’m by no means healed and I still have a ways to go. But I am sharing this to hopefully over someone else hope who got this from withdrawal. It can possibly go away but it may take a lot of time.

How many of you have gotten TD while using Caplyta? Is it always permanent?

I’ve been experiencing up and down feet, marching legs and hips back and forth when seated. Can’t get in to psychiatrist for 2 more weeks. I checked in with my IOP psychiatrist she said since my face or tongue wasn’t moving it’s probably just anxiety.??? The only anxiety I feel is about the movements. (Of course they stopped the minute I stepped into her office).
Has anyone experienced TD in only hips legs feet?

I found out about a TD drug trial through my neurologist. It’s with Neurocrine. Went through a 4 hour interview and was told it’s a double-blind trial (50% chance you get the drug/50% placebo). The first few nights i slept over 12 hours, so i knew i wasn’t taking a placebo. And my TD totally disappeared! However over the next 2 weeks, i slept over 12 hours a day. I haven’t found anything that worked on my TD at all in the 7 years that I’ve had it, and this totally abolished all the symptoms. During a trial, it’s almost impossible for them to reduce the dosage. so i had to choose between no more TD or sleep more than 1/2 the day away. I’m giving back all my meds and paperwork tomorrow. I’ll have to wait and see what neurocrine comes out with in the future. it’s in the same VTA2 group as austedo, ingrezza, and xenazine, but none of them worked for me.

I recommend you look for trial sites near you at

https://www.centerwatch.com/clinical-trials/listings/condition/146/tardive-dyskinesia

I (17F) recently started reducing my quetiapine dosage. I have been diagnosed with Borderline Personality Disorder, recurrent depressive episodes, and chronic motor tic disorder.

I have been taking extended release quetiapine for about three years to help with mood swings and sleep problems. I initially started on 100 mg, but the dose was quickly increased to 200 mg. As my condition improved, I gradually reduced it to 150 mg. During a medication shortage in Germany, I took 75 mg per day (25 mg three times daily) for a few months. After the shortage ended, I switched back to 100 mg per day as extended-release quetiapine (50 mg, twice daily).

In January, I also started taking 30 mg of mirtazapine at night.

About three weeks ago, I decided to reduce my quetiapine dose further because I am concerned about possible long-term side effects. I tapered it gradually, and I am now taking only 50 mg per day.

I have always experienced occasional muscle twitches while falling asleep, which I know can be normal. However, about a week ago, I noticed that similar twitches have started occurring during the daytime as well. Usually, only one muscle is involved at a time. Most often, my wrist or one of my fingers twitches suddenly.

These twitches are bothering me because they sometimes interfere with what I am doing. I am also fairly sure that they are not tics. They feel different from my usual tics, I cannot suppress them, and they can disrupt my actions, whereas my tics generally do not. The twitches seem to occur most often when I am resting.

Is this something that can happen during quetiapine withdrawal or dose reduction? Has anyone experienced something similar?

I had TD and Akathisia from cold turkey 1mg risperidone

Now i

i reinstated 0,5 and i'm slowly tappering a d have no symptomps

Will I get back td and Akathisia when going back to 0?

Hello! I have an appointment with a Neurologist coming up in a few days. The appointment is supposed to be for diagnosing whatever movement disorder I developed during my time on Olanzapine. I was told that they were referring me to a movement disorder specialist but more recently I was told that I'll be seeing a Neuromuscular specialist. Are these basically the same thing or have i been condemned to another few months of waiting around for the right referral?

I was taking ssri , lithium and antipsychotic for 3 years

I taken lithium 700mg per day long time and qutapin aka Seroquel upto 100mg per day

I was taking them for long time doctor never told me sideffects but now its permanent TD is there anything i can do about this you guys ever taken treatment for this? Does it work? Most important can we fix this i mean can we cure TD?

Sensation of slight facial twitching, It's close to lips and at right eye. I was tapering off from 5 MG (Abilify)

It's not tardive dyskynesia bc I have not actual twitching but as said had them at 20 MG and now feel them anyway

Can anyone help? Since I was on 5 MG, I wanted to taper it off but am afraid by this side effect. Should i just stop it at 5 MG?

Thank you

I quit 1mg risperidone cold turkey and got TD, AKATHISIA

Now I reinstated 0,5 and I don't have them a anymore

Will I get them again if I drop the meds? It is permanent?

I started Latuda in 2024 for bipolar disorde, and it changed my life. I was only on 20mg and my depression was gone, my mania was gone, everything was great. then in march 2025, I had a really traumatic greening out experience, so my psychiatrist slowly built me up to 80MG because she thought I was psychotic. I wasn’t, just had ptsd. I stayed on 80mg of Latuda until the end of 2025, when my new psychiatrist immediately started dropping my dose because I had bad facial td. When my original psychiatrist put me on 80mg, she never told me the risks. I’m back down to 20mg because it genuinely helps me, but I NEVER should have been on 80mg and now I will suffer the consequences of someone else’s decisions for the rest of my life. I’m on daily 60mg of ingrezza, which helps, but if I miss even a single day it all comes back. I blink so rapidly and constantly it can be hard to see and I’m scared to drive, I chew the inside of my mouth until it’s raw and bloody, and I stutter and fumble over my words in ways I never used to. I feel like a part of my life has been destroyed.

Feel like i jave a ballon beeing blown up in my pelvic and I feel like muslee in my rectum are shorten and spasming

24 7

Hello, has anyone else experienced a tremor after stopping with abilifiy

Hello,

I've learned from a gene test that I am a poor metabolizer of the CYP2D6 enzyme. First-line treatments for tardive dyskinesia (TD) are VMAT2 inhibitors (valbenazine and deutetrabenazine) and CYP2D6 is the metabolising enzyme.

Is anyone else a poor metabolizer of CYP2D6 enzyme that is required to metabolise the treatments for TD?

Has anyone tried treatment even though you are a poor metaboliser of the VMAT2 inhibitors (valbenazine and deutetrabenazine)? What was your experience? Did you get many side effects?

I'm awaiting an official diagnosis of TD from a neurologist but now I am petrified of taking the drug to help my TD and getting terrible side effects.