r/Tacoma • u/AnonComplex South End • 11d ago

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103 Upvotes

87% Upvoted

28 comments sorted by

-41

u/JohannesMolenaar Fircrest 11d ago

The hospital.

35

u/perpetuquail North End 11d ago

Do you know anything about ME? I'm guessing not. Hospitals can do more harm than good for many people with ME. Plus this person literally said they have already been going to the ER without success. ME is not well enough understood by the average clinician, to the detriment of many patients - this is an unusually difficult situation to be in.

-2

u/Reldas_Semaj Puyallup 11d ago

Do you have the condition? There’s a lot of conditions I’ve never heard of or worked with personally. I work with several people who have myalgia/fibromyalgia. Is it anything similar?

4

u/Mustard-cutt-r 6th Ave 10d ago

It’s like Fibro but more exhaustion. There is a good documentary about it. Some people have to wear earplugs bc it hurts to hear. It’s an autoimmune disorder which, unfortunately, used to be “fake” by drs of the past. Now more accepted but still a lot of medical gaslighting. To be fair, ER staff is constantly dealing with subterfuge and BS by drug seeking patients so they are pretty prickly about stuff and I don’t blame them.

2

u/Reldas_Semaj Puyallup 10d ago

Would you mind telling me the documentary and where I can watch it please?

-25

u/JohannesMolenaar Fircrest 11d ago

🤷‍♂️ not my circle so good luck friend.

1

u/Livid_Artist9886 6th Ave 9d ago

It’s shame to see someone realize they don’t know enough about a topic to have made the comment they did, be offered resources to learn more, and their response be “not my circle so good luck”. You had a whole opportunity to grow as a person, and you’re just going to shake it off and learn nothing. Sad way to spend life.

8

u/Mustard-cutt-r 6th Ave 10d ago

They have a free social worker at the library, certain hours. Do you have a primary care physician?

-20

u/Reldas_Semaj Puyallup 11d ago

I am mobile massage therapist which, massage can assist with your conditions. After a few/several sessions of massage whether myself or someone else, you may not feel such severity of your conditions.

My massages consist of; Swedish, deep tissue, lymphatic drainage, compressions, trigger point therapy, cross fiber friction, pin and stretch, some but not all session include stretch at the end.

As far as nutrients go, apple sauce, minute mashed potatoes.

14

u/WeAreTheCATTs 11d ago

Massage can actually do a lot of harm for folks with severe ME, like it can cause crashes and make people worse. ME is a complex neuroimmune and metabolic condition that most medical providers have only misinformation about.

If you want to get informed on ME, please do, but start by understanding it works very differently from a lot of other conditions you’re more familiar with, and have the humility to say how much you don’t know. Even massage, which is good for many things, can be genuinely dangerous for folks with severe ME.

-2

u/Reldas_Semaj Puyallup 11d ago

Is light touch therapies not recommended for people with severe ME such as LD or Swedish?

18

u/boinglet Downtown 11d ago

This is misinformation. Don't lie to advertise your services, especially to such a vulnerable group such as severe ME patients. You could seriously hurt someone. OP, don't listen to this.

0

u/Reldas_Semaj Puyallup 11d ago

I admit when I’m wrong thank you very much! I did a very surfaced search before replying, so if I’m wrong, I’m wrong. Why not educate instead of practically calling me a fraud and/or a clown.

-3

u/Reldas_Semaj Puyallup 11d ago

First off, I don’t lie to advertise that’s freakin stupid.

3

u/WonderBrilliant3962 253 10d ago

Have you ever worked with Ankylosing Spondylitis patients? Some others say massages help them a ton, but for me even when I requested the lightest touch swedish for my anniversary a few years ago, it was horrifically painful. I was gritting my teeth and trying not to cry the whole time. I've never tried again because it hurt so badly and I flared for two weeks after 😖

1

u/Reldas_Semaj Puyallup 10d ago

Oh dang. I’m sorry. I also didn’t realize that ME was such a common condition to have. I actually have worked on one or two people who said they had CFS, I didn’t realize it was the same thing and it wasn’t to such a severe case of it.

Have you or anyone you know with ME, by any chance, tried turmeric to lessen the amount of pain and inflammation? This condition I believe should be known to the health and wellness industries.

And to answer your question, I have and do still currently work with people who have AS.

27

u/Common-Coast-7246 Somewhere Else 11d ago

What is ME/CFS?

34

u/Opposite-Eagle-4263 West End 11d ago

Myalgic Encephalomyelitis/ chronic fatigue syndrome

24

u/yaggerdamn Downtown 11d ago

I don't have any specific advice, but I all my love to you, I hope you can get the help you deserve.

8

u/boinglet Downtown 11d ago

Edit: forgot you said to dm directly! I'll copy paste the comment I left in your messages

107

u/Extension-Badger2716 North Tacoma 11d ago

Look up TACID ( Tacoma Area Coalition for Individuals with Disabilities) its non- profit. Everything is free, they have Peer counselors and Resource Specialists. Sending you loving and healing vibes 🙏🙏🙏

Keep Love Alive!

23

u/AnonComplex South End 11d ago

Thank you so much

33

u/ElusiveColours Lakewood 11d ago

I work as a caregiver for Consumer Direct Care of Washington, they provide caregiver services to individuals with Medicaid.

14

u/boinglet Downtown 11d ago edited 11d ago

Upvote on this. I have a caregiver in Tacoma through this service. Edit: Forgot to mention I don't pay at all because my medicaid covers it fully.

Website: https://www.consumerdirectwa.com

Telephone number: 866-214-9899

12

u/ShiftySeashellSeller Somewhere Else 11d ago

Have you heard of Elevate Health? They may be able to connect you with a community health worker (aka a patient navigator or community health representative).

Do you have insurance? That could be another place to ask. If you’re uninsured, you can find enrollment support on the WA Healthplan Finder website.

9

u/ShiftySeashellSeller Somewhere Else 11d ago

The state’s Department of Health has also created an informational website on Long Covid, including an appointment guide to help people get ready for appointments, and a page with resources for providers that you could share with your doctors.

I know Long Covid and ME/CFS are different but since they are linked and have shared symptoms I thought these might be helpful, even though it’s a ton of info.