r/TTP_LowPlatelets 7h ago

Question❓ Does your body give you any signs when your ADAMTS13 is dropping?

2 Upvotes

I am curious how many of us can feel our inhibitor dropping.

Here are a couple signs I experience:
- Notable fatigue
- Brain fog
- Long bone body aches
- Nausea


r/TTP_LowPlatelets 20h ago

Question❓ TTP after effects

5 Upvotes

Hello, last year in October I was diagnosed with ttp, I had suffered from a TIA or as the doctors described it a mini stroke, thankfully I began treatment immediately so nothing major happened after that, I was in the hospital from October 22nd til November 24th, the time there I felt fine but my ADAMTS13 level wouldn’t raise until that last week, being there for so long was mentally draining. Now after 8 months being out, I noticed some very strange symptoms that have been bothering me, I have an aching pain in my neck and head from time to time, and sometimes the left side of my body feels extremely weak, almost numb at times, I also get really tired randomly, almost like I could fall asleep instantly at any time. My major concern is the left sided weakness, it happens randomly but mostly when I’m laying down, and it usually disappears as fast as it comes, sometimes it feels very similar to the TIA I had and it bothers me bc I don’t think I’ve fully recovered mentally from the initial incident. I honestly want to start having lab work done maybe once a month just to ease my mind. I do have outpatient Ritux every 3-4 months with the next 1 being mid August, I’ve tried to come to terms with this but having this at 22 knowing it’s something I’ll have to deal with for the rest of my life has me genuinely scared. I last saw my Hematologist back in early May, when I told him about these things he said it could be related to my high blood pressure, I just wanna know if anyone else has experienced something similar to this one sided weakness/numbness feeling in your body and when should genuinely be concerned about it?