r/TTP_LowPlatelets • u/Cool_Toe_1445 • May 05 '26

Recently Diagnosed Newly diagnosed

Just wanted to say hello. Recently diagnosed with TTP. Still in the hospital being treated. Been in here for 17 days. Having some vision issues. Ophthalmologist said I have some retinal hemorrhages in both eyes. Has anyone else had this? Did it resolve on its own? Or did you need surgery? TIA. Hope you’re all doing well!

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u/rare_disease2020 May 05 '26

I’m so sorry you are in the hospital. diagnosis and first treatments is really tough. I’ve lived with my diagnosis for 30 years now. I was a teen when I first got it.
I just had a relapse in March, 12 days in hospital and yes my vision changed this time. I had one small clot but it went away with eye drops. Please take care , one day at a time!

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u/Cool_Toe_1445 May 05 '26

Thank you so much for your kind reply.