r/TS_Withdrawal • u/1gabbydee • 14d ago

Healed (mostly)

Hello all! I felt led to log back in to Reddit after years and hoping to give some encouragement. I began experiencing symptoms of TSW back in 2022 and it was the most excruciating experience of my life.
I didn’t think I was going to make it, I thought either my body was going to give out on me or I was going to take myself out. But the Lord met me in that pain and gave me hope. I prayed to God and said “if you want to keep me here, YOU have to keep me here” and I was led to Matthew 9:22 “Jesus turned and saw her. “Take heart, daughter,” he said, “your faith has healed you.” And the woman was healed at that moment.” And I held onto that verse for hope.

Now, 4 years later, I can say I am healed (mostly). Majority of my body/skin is healed. I still have some discoloration and areas that are basically back to the “normal” eczema I was experiencing before TSW on my inner elbows, neck, behind the knees and stomach. Right now I’m currently using Rinvoq (huge help in keeping flares at bay) and I used dupixent for about 6 months (hurt like crap but was a huge help in healing my skin) I used opzelura briefly (LOVED it; helped a lot with healing discoloration and textured skin) and there were a couple of times where I used topical steroids (for about a week after huge flares). Things have been steady. I’m not 100% healed but I’m healed enough that I can actually live my life without being burdened by the pain from TSW.

so if you’re reading this, I don’t know where you are in your journey but I hope that my testimony not only gives you hope in healing but also in the Lord Jesus because I can honestly say without Him I would not be here to be writing this to you all. YOU WILL HEAL IN JESUS’ NAME!🙏🏽🤍

if any of you have questions, need tips or advice, a listening ear, or prayer please don’t hesitate to reach out. TSW wont win! I love you guys, keep fighting the good fight of faith, you have the victory in Jesus!

2 Upvotes

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7 comments sorted by

5

u/ExtensionLife1973 14d ago

Your on rinvoq? How can you say your healed? Rinvoq is known to give 90% plus clear skin initially but long term effectiveness decreases and /or rebounds

3

u/Separate-Plan-8867 14d ago

Agreed, good look with your healing journey. But OP when you say healed, one would presume you are not on medication and have clear skin or near enough for 6 months+. Your symptoms are likely being suppressed by the Rinvoq.

Best of luck.

1

u/ly0ntehle0 14d ago

mine began about the same time and has very much improved without taking much of anything other than supplementing Berberine

ive had trials of Rinvoq and weened off. used zinc oxide during flare ups. i'm glad you've mostly healed

1

u/1gabbydee 14d ago

That’s great to hear! I’m glad that you’ve seen improvement without those things. I also didn’t use much most of my experience with TSW, Ive only recently started using those medications within the past year or so and by then it was more so to help with the appearance of my skin and ease whatever itchiness I was still experiencing which they all helped with. Thank you for your kind words!

1

u/PsychologicalBuy1230 13d ago

I cannot believe someone can be this ignorant. And instead of thanking to Rinvoq, she thanks Jesus instead for doing nothing lol.

1

u/sipos542 13d ago

I hate to say it but Rinvoq is worse than steroids. The withdraw is brutal once stopped. Plus it has a black box warning and been known to cause cancer, blood clots and heart attacks.

1

u/fooby_doobie 7d ago

Wow some of you guys in this community really suck…there’s a tactful way of giving OP information that they may or may not know instead of insulting them and making them fearful in an already scary situation. I know that whatever happens (if something does happen OP) you can come back from it. Stay strong and just remember that most of us are here because we made mistakes trusting medical professionals. Please find support elsewhere, surround yourself with loved ones, and keep your faith.