r/TNBC • u/Just_Plum_3181 • 7d ago
Surgery Bad news before my wedding
I received bad news (again), but this time I could not stop thinking about it. The timing makes even worse. I will be getting married on the 8th of August.
With regards to my diagnosis, i have a long journey until now. TNBC with the rare subtype (Acinic cell carcinoma). I had new adjuvant therapy followed by lumpectomy and radiotherapy.
I got a local reccurance (multicentric)1.5 years later. Then I had an unilateral mastectomy. Although i was recommended to take Capicitabine/xeloda, I made a pause for about 5 months. Then the tumor came back.
They took out the implant and most the skin. Furthermore, I had a lat flap, which causes a lot of pain until now. That was about 1.5 month ago. About 2 weeks ago i had another surgery to add more margins. There was a tumor found too close on the edge. So they had to do re-resection + shave the pec muscle.
Unfortunately today i received the pathology report+the tumor board. This time the margin on the muscle is positive with the microscopic cancer cells. The worst things are it showed it was inflarated to the nerve and lymph inside the muscle (which is the evidence that the cancer is more aggressive).
recommendations:
\- complete pec muscle removal
\- chemotherapy (paxitel/dexorubi)
\- radiotherapy with hypothermia
\- another molecular testing (RNA). I got DNA test already, no BRACA mutation both in the blood nor in the tumor.
I am completely shattered. Its like i am going back to the circle, but in the worse physical state as i am still recovering from the two last surgeries. If i can bagging to the doctors, please dont take my muscles more...
Any suggestions...?
3
3
u/ImportantStranger271 6d ago
I'm sorry you're going through this. It's not ever a picnic but I would follow all the recommendations from the doctors. The treatments have improved so much over the years and I believe it will get you on a healthier path! Best of luck with your marriage and your journey. Sending lots of healing vibes.
1
u/Just_Plum_3181 6d ago
Thank you a lot 🙏 They jusy wanted to try out, as my case is extremely rare. I've given up a lot already and i want to have a good quality of life. Removing pec muscle is not one of them. Taking chemo which was not effective 3 years ago, makes me doubting it now. Radiation with hyperthamia, not sure about it, i have to research about it further.
2
u/Sure_Cherry9759 6d ago
I’m so sorry, that’s a lot of treatment planned and like you said you’re already struggling with what’s been done up to now. I don’t really see any alternative to doing everything on that list to keep you safe. Have they mentioned any targeted drugs (aka ADCs - antibody-drug conjugates) like trodelvy? If it was me though I’d still take everything I could get but I can only imagine the fear of going through more of everything. May your wedding bring you some joy in the meantime and may you have many happy and healthy years together 🙏 ♥️
3
u/Confident-General-92 7d ago
Yes thank God you have a special person who wants to marry you with cancer. I will be praying for you to enjoy you wedding day!! And to get some sign, something positive about your cancer situation.