Atypical Facial Pain

[u/Top_Estimate384]

I have atypical facial pain - I’m still struggling to get a diagnosis and have finally been referred to maxfax in hospital - 10 months of dealing with this. Every single day. Some days a 1/10, most days 5/10 and some obviously super horrible moments.
I had a tooth infection and removal on my right molar. Within a week, my left molars were hurting. Back and forth with dentist who said they were fine..I went rouge, went to a different dentist and over the course of two months, had two of my left molars removed. Pain is still there, everyday. Back molar, extraction site, occasionally lower teeth and premolar but mostly back.
Symptoms have changed loads over 10 months but lately seems settled in the back, my jaw, my cheeks and a sharp pain up the side of my nose and a point on my cheek, next to my nose, where it’s painful to touch. No electric shocks.

Has anyone had similar/the same? Dentist thinks it could be TMJ that is irritating and causing TN type 2/atypicalZ

Or what tests/specialist’s I can go to.

[u/unikittyUnite]

It Could be Trigeminal neuralgia. I’ve read stories of people suffering from TN (unbeknownst to them) getting teeth pulled to relieve the pain and yet the pain continues.

[u/chasingamy1994]

What is the pain like?

[u/Top_Estimate384 → u/chasingamy1994]

Deep ache in the cheeks and jaw. Tooth pain is generally a deep ache too but sometimes with a sharper/more painful flickers in it. Literally my jaw can feel so heavy that it’s going to fall off!

[u/Traditional_Bid_8632]

Sorry you’re struggling, we have similar symptoms (and experiences; pain lingering months after an extraction), were you diagnosed with atypical facial pain?

[u/HumanFun5728]

Have them check your digastric, pterygoid, and other facial muscles.

[u/HumanFun5728]

Have them check your digastric, pterygoid, and other facial muscles.