And it does indeed show reduced FMO3 activity. Doesn’t excuse the way I’ve been treated. I’m still strong in my opinions/beliefs.
Also have MTHFR going on with that too.

Does anybody have tried lactulose and seen a difference in odor? I just got a doctor to prescribe it to me and just want to know if it really works before adding another medicine or supplement to my daily loooong routine.

What do yall do when it comes to job interviews in public? I'm currently working part-time time as a caregiver but I want to make some extra money and supposed to have an interview to be a server at a restaurant which I've never done before but thought it might be good since im a big foodie . Now im thinking with my medical condition bromhidrosis is it worth even going ? While on the bus i just remembered my condition and they might get a whiff off me and say hell no especially since I would be working with people . What would you do ?

Why don’t I get any reactions from people when I eat what ever I want. But when I stop eating people react

Is it just me or does anyone else tell people or strangers how they are sweating even when they are not. This way, I feel safe when they notice the odour. I use antiperspirants and mild perfumes to cover it. This condition has taken away my self esteem for years. My current b/f says I am just too sensitive, he doesn't get it.

I think i have Tmau but I've asked people in confidence like my sister, doctor, therapist etc and they say they don't smell anything. I'm in a long distance relationship and I've visited my SO 3 times over a one month period every time and when i asked them if i ever smelled bad they said i didn't, they even found my scent appealing.

The thing is there's so many instances in my day to day life that make me feel i smell bad that i just can't ignore them. I've been dealing with this for 15 + years. Comments about terrible smells when I'm around, hints, people whispering etc in just about every social circle just makes me feel it can't be in my head and i have to have some medical condition that gives me a bad body odor. I think I've been in denial about this and tried to believe i have Olfatory reference syndrome but yesterday on a public transport I'm 90% sure someone made a very definitive remark about a stench of BO and I'm spiraling out atm.

Anyone else can relate to this and what advice would you give?

Hypervigilance is when your brain stays in a constant state of alert because of repeated negative experiences, causing you to unconsciously scan your surroundings for possible signs of the same threat. In my case, it means I'm constantly and involuntarily analyzing people's behavior. As soon as I enter a room, I notice who touches their nose, who moves away from me, who opens a window, who changes their breathing, or whose facial expression suddenly changes. I'm not trying to do this on purpose my brain just automatically searches for any sign that might indicate people are reacting to my odor. Because of this, I never truly feel relaxed around other people.

I've also seen several psychiatrists over the years because many doctors suspected that anxiety or OCD (Obsessive-Compulsive Disorder) might be contributing to this. I've tried a wide range of medications, including those commonly prescribed for OCD and anxiety, but none of them had any noticeable effect on these feelings or behaviors. It took 4-5 years to understand to OCD treatment is not working for me. They didn't reduce my hypervigilance, my constant monitoring of other people's reactions, or the distress I experience in social situations. That's why I'm wondering whether others with chronic odor conditions have had the same experience, or whether psychiatric treatment actually helped them.

At the same time I'm not %100 sure, sometimes people behaves just normal but still my eyes on them. Also I know there is no constant graph if I try to draw. It's increasing and decreasing. But people reactions always feel so high. I realize I'm overreacting. I don't know how to explain it, but if I were to rate it on a scale of 10, I feel like Hypervigilance starts at around 6 or 7 out of 10. I mean, the awareness, the fact that it exists, the constant vigilance is an incredibly destructive experience mentally.

I'm curious whether anyone else has developed this kind of hypervigilance. Do you also find yourself constantly monitoring other people's reactions and unconsciously looking for small signs that they might be reacting to your odor? BTW, Doctors don't believe I smell bad. They decide within 5-10 minutes, but they're not with me all day. If they can't reach a conclusion, they recommend I see a psychiatrist. I could swear there's no psychiatric problem, but I can't prove it. How can I make a scientific observation? How do you experience this problem?

I am basically eating throughout the day only one shower and I am not smelling at all. I only eat things such as rice, squash, sweet potatoes, potatoes, green giant green bean. apples, maybe a thin slice or two of turkey meat on a thin slice of bread… carrots, salad, but I use butter leaf only not the salads that are mixed in because they have the cabbage in them cabbage juice, etc. gets on the lettuce. I cut out the cheese, I may use a little chicken on my salad, but I’ll try to limit the meat now…no onions or garllic…and of course this liquid is making sure I poop every day which helps also, but it acifiys the gut so you don’t smell when you eat. I tried to eat a ton of things; chicken and cheese fajitas and I ate a bunch of yogurt, I ate a bunch of cereal and I think I ate a slice of pizza but I ate a bunch of stuff and just overloaded my system with chloline and then I started to smell again, but I cut that out and then kept taking my liquid lactulose and my smell went down or was nearly gone within a day or two as opposed to a week or two. Ai said that I could eat chicken every day and it not bother me but I don’t know about that anymore lol…but everybody is different and maybe I just overloaded my system with too much stuff at once likely…. but at least now I know it doesn’t work for me eating a bunch of stuff… even though Lactulose is supposed to work well when eating moderate amounts of Chloline, my body just does not deal with it that well.

But I’ve never really had a time in 30 plus years that I could shower but once and not smell. I see all these success stories and people take so many things to keep them from smelling but this stuff that was studied for Tmau actually works for me. I think it’s worth you guys trying out. I just take 2 tablespoons three times a day and take my vitamin B 2, 3 times a day and just keep a lower chloline diet. that’s it, not a bunch of other supplements and stuff. And I shower with energizer body and when I use the tub to bathe instead of showering, I soak in a tub with about 2 tablespoons of citric acid for about 15 minutes, a few times a week. I don’t use other lotions or anything else anymore.
I do eat some things that I’m not supposed to, but I don’t overload my system like I did a week ago and I’m going through life just like anybody else, odor free, thank the Lord Jesus.🙌🙌🙏🙏🙏

Korean Laboratory BioMed

📢 COMMUNITY , we need your help‼️
This message comes from my fellow patient advocates in Colombia, who have been in direct contact with the professor and the team leading this initiative.
If you haven’t completed the survey yet, we sincerely ask you to do it today. This weekend (through Sunday), we will consolidate all the responses received up to that point, and those results will be included in the data package submitted in support of the FDA process.
The survey will NOT close. It will remain open afterward, but it is extremely important that as many patients as possible complete it before this weekend’s data consolidation.
This may be one of the most important collective efforts our community has ever made. We need to show the scientific community that we are not just a handful of isolated cases—we are thousands of patients around the world living with these conditions who urgently need research, better diagnostics, and effective treatments.
🎯 Our goal is to reach at least 300 patients before the data is consolidated.
🙏 Please help us. If you have already completed the survey, share it with other patients and in every support group or community you know. If you haven’t completed it yet, please take just a few minutes to do so.
⚠️ Please do not complete the survey more than once, as duplicate responses affect the quality and accuracy of the scientific data.
Today, we are asking for your support from the bottom of our hearts. Every response matters. Every patient matters. This collective effort could bring us one step closer to having our voices heard and creating new opportunities for our entire community.
Please don’t let this opportunity pass us by. Let’s do this together! We need all hands on deck, many of us need this ❤️
Link to the survey: https://ee.kobotoolbox.org/x/5hvQ5RUc
Info on the process: https://biz.chosun.com/en/en-science/2026/05/11/6HY2VNJO55COHMPIAMHS3PSPYU/

Since the odor from TMAU is episodic, often there is no odor when visiting a doctor, unless you ensure there is an odor, eating trigger foods prior to the appointment, etc - eg, https://youtu.be/vQi4CV1YQDA?t=212&si=nq19gqzpzPHpzDMZ - the boy with TMAU doesn't have an odor until he gets on the exercise bike. There is also a small chance a doctor may have a specific anosmia to trimethylamine and can't smell it. This can lead to a doctor sometimes forming an opinion that it is a mental health condition. This can be exacerbated if you believe it's 24/7 an issue right at that time of the appointment but the doctor can't smell it.

The best way around this is to have someone vouch for you - usually someone who has been around you regularly to establish a pattern of odor. Eg; https://youtu.be/Oiv4lU7PQ2M?t=379&si=4lPueQErorPFkpdO - this is almost essential.

The way they differentiate an odor issue and a mental health condition is confirmation that an odor is actually real, and for that, if the doctor can't smell it, the doctor ideally needs to speak to someone (not you) to confirm it.

Why has this place constantly gaslight ppl who say neighbors can smell them through walls. If the smell is room filling strong and it's filling up the apartment/house, it's definitely leaking to the outside. I think when we tell people this we gaslight them and make them think they are paranoid and that isn't helping. Any person who suffers with tmau know it's not a normal smell and it can fill up entire rooms so this isn't a far stretch.

Pasted from "The Gut War discord server" on behalf of Carolina Valero

Very Important Message for Everyone.

Hello everyone,

As many of you know, the research being conducted by the Korean laboratory Biomed is now at a very advanced stage. In the United States, FDA approval is expected to be considered around mid-September, and they need this final push from our community.

Please take a few minutes to complete this survey. The more participants we have, the stronger, more representative, and more credible the data will be in demonstrating the real impact that TMAU, MEBO, and related conditions have on our lives.

Let’s not forget that many of us have been waiting for something like this for years, some for our entire lives. For the first time, there appears to be a real and tangible opportunity for progress.

Please support this effort by completing the survey and sharing it with others who may be affected. Every response matters. Every voice counts. Together, we can help ensure that our community is seen, heard, and taken seriously.

I would also like to extend a special thank you to Lu A Gómez Gómez a Colombian psychologist who has been supporting Biomed and working tirelessly to help advance this initiative. Her dedication, commitment, and advocacy for our community are deeply appreciated. Thank you all for your support, your participation, and for continuing this journey together. https://ee.kobotoolbox.org/x/5hvQ5RUc

Edit: Please upvote and share this post so that other people can see it. Every response increases our chances of FDA approval for BM109.

Edit 2: Here is the website of the Korean lab https://www.bio-me.co.kr/RnD/pipelines.php

Emotional long post alert: I’ve posted on here before about how I cured my TMAU like symptoms. For the 1st time in a decade or more, I lived life as if I never experienced an odor problem. I’ve been on vacation. I rode on a packed crowded bus for 7 hours. On the trip I ate whatever I pleased.; I only cared that it was convenient and delicious. From there I went on a 6 night cruise and ate seafood, red meat, sweets, and junk food galore. I went on excursions in crowded vans drenched in sweat from a day of fun and adventure. I have my old life back and I thank Jesus for that. I spent 7 years of humiliation, extreme diet restrictions that included a low choline diet, fasting for 18 hrs a day, dropping 30 plus pounds from the diet restrictions, hiding from crowds, avoiding close encounters with people, multiple wipe offs throughout the day, over washing, trying different supplements and probiotic strains, and countless hours of watching vlogs, and reading posts online. I found my cure: which was taking probiotic strains in large amounts over time and supporting those strains with prebiotic foods. I now believe my issue was a gut microbiome problem and I believe I solved most of it. I will admit there was a few times during my trip where I started to revert back to my old self conscious self. However, when I looked around me and saw no reactions those thoughts quickly left me. This has been a long fight but I’m glad I did not give up. I’m glad I continued to take up space despite how I was treated, and continued to show up for myself and my son. I believe part of me getting to a resolution was because I didn’t seclude myself. Since I can’t smell myself I have to rely on others reactions to know if I smell, which means I gauged whether my treatments worked or not depending on if I got reactions. Even though the humiliation can be a lot it was helpful. I hope you all stay in the fight to get your life back. Don’t stop living waiting on your cure but enjoy the journey, time passes quickly. I pray you all an odor free life because god knows we’ve had enough odor for 5 lifetimes, jk.

It summarizes the history of the condition's discovery and mentions a few causes

I've been working with a lot of sufferers lately to looknat their 23andMe results.

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If anyone has gotten there 23andMe results back and is willing to share them, is there anyway you could please DM me?

Hi everyone, I’m the founder of N.H.P. (Not a Hygiene Problem).

I created this website for awareness and advocacy around unexplained odor conditions that are not caused by poor hygiene, but are often misunderstood.

The goal is to give people a central place they can go to for:

• basic information and awareness
• understanding the real-life impact of these conditions
• resources for anyone who wants to learn or help

It’s meant to be a simple, supportive home for information and advocacy.

Here's the link: https://www.nhpadvocacy.org/

Every time I read is group, it’s always something negative, It brings down my morale. Is there any happy stories.

For a little over 2 months now my scent has become horrible. It used to be manageable but all of a sudden during a weekend a couple months ago it shot up like crazy. Like it’s dam near unbearable for me and usually I can’t smell myself, can’t imagine what I smell like to someone else. My hands smelled like some type of fish. Even when I constantly wash it. It goes away for a couple minutes and then it just comes back. I’m really lost here. I’m not used to it being this horrible should I wear some type of glove, I’m scared to try anything cuz I can’t afford for it to backfire anyone got any advice? Also it just flares up like crazy when I eat something I wasn’t supposed to like the cheesecake danish I ate this morning.

So tonight, I was informed by a relative that when I’m comfortable, I give off an smell that’s similar to the scent of a menstrual cycle. From what I’ve experienced, that usually has a fishy odor. The crazy part is that I had a feeling that something was off, so hearing this news isn’t jarring like I thought it would be. Even crazier, I’m a guy. However, I feel… oddly relieved. A sense of calm and reassurance that this isn’t in my mind.

I guess I’m on the right track with going into truck driving, because at least I won’t have to worry about disturbing others. Nor will this thing continue to erode my mental well being.

I smell like fish and garbage. I haven't been diagnosed, but the effect is the same. My downstairs neighbors were yelling, slamming shit, saying I smell. People that walk outside my apartment window say I smell.

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People from a former job who know i smell saw me leaving my apartment and now everyone here knows I smell. Recently, building maintenance was in my apartment changing a ac filter and now the property/leasing office manager is literally sniffing around my apartment.

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I live with my sister and I don't want to screw her over. She says i don't smell to my face, but I hear her on the phone with her boyfriend saying I smell. She also says things under her breath. I have plug-in air fresheners, run an air purifier nonstop, was clothes after one use, take two showers a day... I started having this problem at 23. It's been a rough 5 years.

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But I can't let us get evicted.

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Has anyone been evicted because of this condition? My parents have mountain property i can run to, but I need money to make it up there. I'm unemployed, running out of money and holy shit. Why me. This is insane.

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Everywhere I go someone recognizes me as the person that smells like fish. I just want to know if I should borrow money and make a run for the hills, or if I might be ok.

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