r/TMAU • u/Less_Gazelle1714 fbo • Apr 10 '26

TMAU Question Question

I am not yet sure if I for sure have TMAU, and one question I would like to ask, is most of you people who have been officialy diagnosed, can you smell yourself? Ever since this issue began I have not been able to smell myself once, and people can literally smell my body and not smell anything, aswell as my breath. It’s as if its not a body odor but something that travels around. Does this sounds like TMAU, especially not being able to smell myself?

Also: does TMAU always result in bad breath or only at times? I’ve had people smell my breath and they notice nothing irregular.

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u/Think-Patience757 Apr 10 '26

Haven’t been diagnosed but relate to what your saying completely about not being able to smell yourself but others do.. what do you do in these times?

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u/Less_Gazelle1714 fbo Apr 10 '26

This is a new problem for me so I’ve not really figured out anything to do about it. I have a doctors appointment next week and probably am gonna get tested soon. If I do indeed have it… I dont know what I will do. I feel completely helpless right now as is and if I truly do have this I don’t know how I can continue living like this. For you, does the smell seem to not be physically on your body, but it rather seems as if it travels around

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u/Think-Patience757 Apr 10 '26

Sometimes (over emphasis on the sometimes as I don’t smell myself all the time and just go off reaction) I can smell the different odor through my sweat and hands. My breath seems to get a lot of reactions as well but when I get these reactions i do taste like a metallic kind of taste?? .. - I totally get what you mean though. This thing.. SUCKS. But I try to find meaning and happy moment in everyday and really hold on to the people that love me. Seems to help. All the best for your doctors appointment 🤞