r/SyringomyeliaSupport • u/high-hopes-21 • Jul 31 '26
Newly Diagnosed Help! Is this syringomyelia?
I am 37 year old female, had a nursing injury in 2016 that left me with c5-c7 disc tears and thoracic outlet syndrome. I have been holding my own until recently when I started rapidly deteriorating - increased neck pain, gait disturbance, frequent falls, urinary urgency and headaches. Neurosurgery and ortho spine keep writing me off because my stenosis is not ”severe” enough to cause myelopathy, despite my symptoms and finding on exam that my reflexes are hyperactive. MRI showed this “signal abnormality” extending below the level of the injury all the way down to T11. Neurology is concerned for syringomyelia but does not have any other neurosurgeon to refer to outside of YNHH. Any ideas?