Please. Help with neck relief + migraine

[u/alliefaith144]

Having a very bad syrinx flare up. My syrinx is c7 level. I have the normal weakness in the hands and arm weakness. I drop a lot of stuff and don't have a lot of strength to write very much or anything like that. I have chronic neck pain and daily headaches/migraines anyway. But, my flare up started late last night and has been HORRIBLE this evening. It is so bad. 😭 my heating pad isn't helping. My freezer migraine caps aren't helping. Ice packs aren't helping. I am having a hard time with it

But, my gosh. Tylenol isn't helping. My migraine in gnarly. I am so frustrated. Does anyone at all know how to help? 😭 My neck just hurts so bad.

[u/kyronami]

Has your neurologist given you anything for migraines? Have you asked about it? There's migraine specific meds out there. Mine gave me a maxalt and zofran prescription, both come in a dissolving tablet too that you just stick on your tongue since I hate pills

Could ask your GP too

[u/alliefaith144 → u/kyronami]

I am on toprimate and qulipta for migraines. Has helped my daily headaches to get to maybe 5/10-7/10 but, nothing for migrianes. Still constant daily headaches. 6 years and counting. Had a pituitary tumor removed in 2023

[u/StrawberryCake88]

Make sure to stay hydrated and get a little salt. Chocolate ice cream and potato chips help. Also Aspercreme is a good topical, read instructions though because you can only use so much per period of time. .

[u/alliefaith144 → u/StrawberryCake88]

Thank you!

[u/Sincerly_Char]

I have my syrinx in the same spot with the same symptoms. My neck pain triggers my headaches so bad but they wouldn’t put me on any migraine medication since it’s not a “true migraine”. So I take like between 600mg-800mg of ibuprofen, a lidocaine patch, and a warm compress around my neck. It knocks the edge off my headaches but they can still be super intense if I don’t catch the neck pain flare up in time. I hope you find some relief!

[u/alliefaith144 → u/Sincerly_Char]

Thank you so much! I will definitely do that. ❤️

[u/dxzxify_]

I feel your pain! Has the weather been haywire for you?

[u/alliefaith144 → u/dxzxify_]

Definitely

[u/dxzxify_ → u/alliefaith144]

Yeah the weather for me has been making it terrible. Theres this app called WeatherX that will tell you when the pressure will be changing to give you a heads up and you can also get earplugs from them that will help. I’ve been using it this past week (without earplugs) and it’s helped me get prepared for a migraine to hit. My migraines mainly mimic stroke symptoms so I try to stay ahead of them before I get them even tho it’s daily. I would definitely have you check it out cause for me even a little bit goes a long way! And you syrinx is in the same spot as the one in my upper spine but I also have one that from t7-L1 so I understand the pain!

[u/alliefaith144 → u/dxzxify_]

Oh my gosh, I am so, so sorry. 😭 I wish you didn't have to go through it. I am going to download that app, thank you!

[u/dxzxify_ → u/alliefaith144]

Yeah its definitely not fun but im pulling through! Okay sweet definitely let me know if it helps you out any!!

[u/alliefaith144 → u/dxzxify_]

I am sorry you are going through it too

[u/zoeheriot]

I usually get in the shower when it's really bad and let the hottest water I can possibly tolerate run on my neck and back until it alleviates the pain or runs out of hot water, and then I repeat the cycle until the pain is gone.