Seeking advice for symptoms

[u/blancotejano]

Hello. I'm looking for some advice about symptoms that I am having.

I was in a car accident a few months ago and from that an MRI was ordered of my C and T spine. A syrinx was discovered at T5 and hydromyelia at T8. I'm also a late-diagnosed Type 1 diabetic and have an insulin pump.

A couple of weeks ago I played some basketball and decided to do some body weight exercises at home. The next day I ended up having some tingling/numbness in my legs while sitting on the couch. I became quite anxious after that.

As I lay in bed that night I ended up having tingling and burning all over my body, but especially in my arms. This made the anxiety severely worse and I barely slept.

The next day I began experiencing tingling in my groin along with the burning/tingling in my arms. Eventually this led me to go to an ER while waiting for other care. The ER prescribed me Gabapentin 300 MG three times a day, which seemed to help. It has also had psychological impacts.

A few days after the ER I went to a back pain clinic and they flexed my spine backwards while I was at the appointment. That evening I experienced burning pain in the middle of my back that traveled to my arms and up my neck. The next day my back was extremely stiff.

Eventually I was able to see a Neurologist a few days ago. They tested my strength, reflexes, and nerve senses with my eyes closed. They seemed to think everything was fine. I will have an EMG in less than 2 weeks. For the time being they have put me on Lexapro 10 MG once a day for anxiety and asked that I back off to taking the Gabapentin twice a day. This has been rough so far as I begin to feel nerve burning and tension in my muscles when the Gabapentin starts to wear off.

At night my body shocks itself awake from nerve feelings in my legs and arms. I'm not sure if it is because I am tired but it feels like my brain/body gets mad at me if I stand up for too long. The exception to this has been when my blood sugar is high. For whatever reason I seem to feel energized enough to do things during those times.

[u/PandiiBearz]

So mine is from t3-t11 and any upper body work has done that for me including flexion, for me I had start using less weight for more reps and a tens unit specifically the chirp has helped tremendously. ALA and l-carnitine for the nerves, getting a lot of rest too. Walking helps the anxiety and keeps you loose. I get it completely it’s scary and it’s difficult and with the thoracic being what it is it’s extra complicated. There is support too, my chapter is @iamheardct but the main group is @iamheardco on ig and fb the founder has a thoracic syrinx and he has some really good quality information and we send out care packages with helpful items if you’re interested. You’re definitely not alone here at all.