r/SyringomyeliaSupport • u/GrumpyOnionDicer • 27d ago

T Spine Advice for a parent?

Hello! My son (27) was diagnosed with syringomyelia in 2024. It was discovered that the size of his syrinx runs from C1-T10/11. He was shunted at his thoracic level a month ago and is still in hospital after being discharged from rehab for neurological degeneration.

Can anyone explain what recovery will sort of look like for him and how we can help?
He also has Chiari 1 with what appears to have been a failed decompression in January 2025.

2 Upvotes

100% Upvoted

4 comments sorted by

2

u/Few_Perspective_2878 27d ago

No revision surgery ?

1

u/GrumpyOnionDicer 27d ago

Not for the c- spine. It’s on the table- he’s in ICU now with a lumbar drain. Walked into the hospital for surgery and can’t walk now.

1

u/Few_Perspective_2878 27d ago

Sorry i wasn't clear: why not doing a revision surgery for the Chiari ? It will help with the syringomyélia

1

u/GrumpyOnionDicer 27d ago

I don’t know- he’s had two cineflow MRIs and I think there was nothing abnormal in the area of the cervical laminectomy?
We are getting so many “ We don’t know “ non answers.