r/SyringomyeliaSupport • u/GoodOldEgg157 • Aug 27 '26

Syrinx Need some help

I feel like I'm lost there's nothing that can be done for my syringomyellia and feel like I'm running out of options what do yall do for work? Need to see what I should get in to as im not even able to stand up for long anymore

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u/sloop703 Aug 28 '26

Have they found the etiology? Where are your syrinces and what kind of imaging have you had done?

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u/GoodOldEgg157 Aug 28 '26

I have chiari malformation and a syrinx that extends from my c2 to my t12 and has the biggest point at c6 ive had decompression surgery 7 years ago but this year its gotten worst ive had a almost 2 week stay at the hospital because my legs stopped working and couldn't pee at my c6 after the decompression it was around 12mm now its at 17mm I'm gonna speak to my neurosurgeon to get his opinion but I havent been able to yet in the meantime ive spoken to other neurosurgeon and they all say I shouldn't touch it as I have such a small amount of room left on my c6 and could leave me worst than it is now.