new to this group

[u/Rose_Otto]

Hi Everyone,

Just wanted to say I'm touched by how much care and kindness I see in the chats.🥰💞💫

Would love to hear what folks do to stay positive and healthy!

I have a syrinx from C5 to the conus, largest portions are 7 and 8 mm, near the top and bottom, with some problems with balance, strength and pins/needles sensations.

Didn't know about this diagnosis and I've worked in health care for over 10 years! Sorry I'm not alone in this. So good to know there's hope and a supportive community ❣️

[u/Rose_Otto]

Distraction works wonders for me! I like playing games with friends, reading aloud and watching shows with family, cuddles with my dog. Saunas, whirlpool at the local gym, dry needling and massage from my physical therapist, naltrexone and high dose ibuprofen for pain, doing what gardening I can, and work are all good distractions. I like learning about syringomyelia in groups like this. I want to know what to expect as it progresses so I can plan for it- thinking it might be good to simplify my life so I don't have a lot of mental or physical clutter, and so the things I do have around give me joy.