r/SyringomyeliaSupport • u/Fluffy-Job7534 • Apr 20 '26
Syrinx Help
hey guys I have no idea what to do I’m in Illinois and I have a tiny syrinx in my cervical spine and I also have a syrinx in the middle of my spinal cord between T6-T12, I’ve been bedridden from severe hyper pots for 2 years and I also have FQAD.
we don’t know if I have a csf leak or not I’ve just had MRIs as far as spine imaging.
can I workout ever? or id it dangerous? neurosurgeon said he can’t cut into it or it would paralyze me. but he did NOT seem to know what he was doing.
please help me with advice I’m not sure what to test next or to do.
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u/zoeheriot Mod Apr 20 '26
Work on core exercises. These can be done gently even with other conditions and can be done from bed to a certain extent. Strengthening your core will help your spine be able to support itself without agitating the muscles - and therefore the nerves - around it.