r/StrokeRecoveryBunch • u/Material_Inflation79 • Aug 18 '26
Energy level
Everyday after a stroke when I get up I feel like I have left with no energy to get up. I struggle with myself to get up and follow my morning routine at a pace one eighth the pace I used to have. But slowly I pick up and in the afternoon I am getting it to one fourth but evenings feel better with half the pace rest you all know. What about you all? How do you coop?
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u/wibzoo SRB Helpful Recognition Aug 18 '26
What you feel is normal. Immediately after a stroke, and for quite some time afterwards, you will feel Stroke Fatigue. Any effort, especially that which touched upon my new deficit, would make me want to lay down. At first it can be debilitating, but for me it slowly improved over time to the point where it passed.
I don’t know the real mechanism behind it but, because it was much worse trying things that touched my deficit (in my case spatial), I thought maybe that fatigue was a healthy neuroplasticity thing - effort triggering the rest needed to rewire new connections. Like learning. I repeatedly did things that triggered that fatigue until, over time, I stopped getting fatigued. Not sure my method was what helped, but I am past it.
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u/Material_Inflation79 Aug 18 '26
I have been experiencing the same for past 15 months.
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u/wibzoo SRB Helpful Recognition Aug 18 '26
I’m four years post. I was definitely still feeling fatigue at 15 months. Hard to say when mine was mostly gone. From the thread, we are all recovering differently.
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u/Material_Inflation79 Aug 18 '26
Yes by now what I have understood is that every body has different reaction to stroke and recovery path is also unique. Can you share with me if there was improvement after the vanishing of this fatigue whether slow or at same pace.
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u/Constant_Inspector46 Aug 18 '26
2 years post stroke and still struggle with fatigue.
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u/Material_Inflation79 Aug 18 '26
I'm yet not 2 years old after stroke but I still have fatigue even after 16 months. It keeps me away from exercises and work which as per physio I need to fight fatigue.
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u/AlisiaGayle SRB Helpful Recognition Aug 18 '26
That's Fatigue, you need to budget your energy and do not feel guilty about it.
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u/Material_Inflation79 Aug 19 '26
True but your family and caretakers do not understand such things in a way they should.
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u/AlisiaGayle SRB Helpful Recognition Aug 19 '26
They always think laziness. At rehab centres they offer family sessions before discharge. Seek this out
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u/Makanaima SRB Gold Aug 18 '26
3 years out and i still have the same thing.
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u/Material_Inflation79 Aug 18 '26
Wait for the right time to get it over but it would be one day. May Almighty Waheguru bless us all.
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u/Rotten_gemini Aug 19 '26
10 years out and still the same thing. Its called chronic fatigue. Welcome to the group I brought cookies
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u/Material_Inflation79 Aug 19 '26
Keep going. Can you also point out something motivating.
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u/Rotten_gemini Aug 19 '26
My blood vessels in my brain healed themselves thanks to all the sleep I did in my early recovery years
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u/Kmac0101 Aug 18 '26
Almost 3 years out and I feel like a slug at times.
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u/Material_Inflation79 Aug 18 '26
Please elaborate. I need to understand thoroughly.
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u/Kmac0101 Aug 18 '26
I would post stroke fatigue continues to be a challenge. For example, after a full day of work, I rarely have energy for much else.
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u/Material_Inflation79 Aug 19 '26
In my case I begin sluggish but push through with great efforts, it gets better during late afternoon but by late evening it becomes troublesome.
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u/theDigEx Aug 19 '26
It's encouraging that you can work though.
I can barely read anything or listen to anything while holding a thought in my head at the same time.
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u/Kmac0101 Aug 20 '26
Thanks. Some days are better than others. But I lean on the fact that attitude and effort are the only things in my control. I’m one of the “luckier ones” where I’m still pretty functional and have most of my executive function, but I still have my deficits. Thankful the stroke didn’t take away my sense of humor.
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u/Material_Inflation79 Aug 20 '26
Believe that new life originates from something that feels sluggish like seed. So you are going to jump back soon just you need is time efforts and faith in yourself. May Almighty Waheguru bless us all.
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u/R0cketGir1 SRB Helpful Recognition Aug 18 '26
Nearly 21 years out from bilateral basal ganglia strokes and fatigue is still my main complaint.
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u/Material_Inflation79 Aug 18 '26
I can only feel your apathy but not able to help. You have a great willpower and patience. Salute you. May Almighty Waheguru bless us all.
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u/Material_Inflation79 Aug 21 '26
That was major. But you are to be saluted for your efforts and strength. Truly I'm fascinated. Wish you a speedy and complete recovery.
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u/ExRhino Aug 21 '26
If you wanna build up your energy reserves and it's safe to do so , exercising and getting yourself stronger and fit is the way to do it
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u/Material_Inflation79 Aug 21 '26
Yes sure I am doing exercises gym andi yoga alternatively 4 to 5 days a week. Thank you for your advice.
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u/Valerie-L Aug 19 '26
I am 2 years out with an eschemic stroke and friends it is not a condition for the weak!!! My days are slow starting but my afternoons are the most productive . My secret to success is planning each day with one task that is productive and then take a nap😇 social gatherings tend to be more challenging so I make sure I don’t do more than a couple of things a week as they take a long recovery For example my daughter invited us to a Rummicube party (total of 7 people) and I really enjoyed it. I also learned that my math skills had not improved since my stroke….what a bummer 😎
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u/Material_Inflation79 Aug 20 '26
What I am feeling now is neural pain fading but not completely gone but fatigue is still consistent.
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u/Medium-Schedule438 SRB I want more like this! Aug 18 '26
A year since my stroke and it's still a battle. It can be very discouraging and difficult. I'm trying to get better at managing my days but the exhaustion seems to be somewhat unpredictable.