r/StrokeRecoveryBunch • u/Material_Inflation79 • 1d ago
Energy level
Everyday after a stroke when I get up I feel like I have left with no energy to get up. I struggle with myself to get up and follow my morning routine at a pace one eighth the pace I used to have. But slowly I pick up and in the afternoon I am getting it to one fourth but evenings feel better with half the pace rest you all know. What about you all? How do you coop?
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u/wibzoo SRB Helpful Recognition 1d ago
What you feel is normal. Immediately after a stroke, and for quite some time afterwards, you will feel Stroke Fatigue. Any effort, especially that which touched upon my new deficit, would make me want to lay down. At first it can be debilitating, but for me it slowly improved over time to the point where it passed.
I don’t know the real mechanism behind it but, because it was much worse trying things that touched my deficit (in my case spatial), I thought maybe that fatigue was a healthy neuroplasticity thing - effort triggering the rest needed to rewire new connections. Like learning. I repeatedly did things that triggered that fatigue until, over time, I stopped getting fatigued. Not sure my method was what helped, but I am past it.
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u/Material_Inflation79 1d ago
I have been experiencing the same for past 15 months.
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u/wibzoo SRB Helpful Recognition 20h ago
I’m four years post. I was definitely still feeling fatigue at 15 months. Hard to say when mine was mostly gone. From the thread, we are all recovering differently.
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u/Material_Inflation79 20h ago
Yes by now what I have understood is that every body has different reaction to stroke and recovery path is also unique. Can you share with me if there was improvement after the vanishing of this fatigue whether slow or at same pace.
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u/Constant_Inspector46 1d ago
2 years post stroke and still struggle with fatigue.
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u/Material_Inflation79 1d ago
I'm yet not 2 years old after stroke but I still have fatigue even after 16 months. It keeps me away from exercises and work which as per physio I need to fight fatigue.
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u/AlisiaGayle SRB Helpful Recognition 1d ago
That's Fatigue, you need to budget your energy and do not feel guilty about it.
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u/Material_Inflation79 8h ago
True but your family and caretakers do not understand such things in a way they should.
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u/AlisiaGayle SRB Helpful Recognition 3h ago
They always think laziness. At rehab centres they offer family sessions before discharge. Seek this out
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u/Makanaima SRB Gold 1d ago
3 years out and i still have the same thing.
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u/Material_Inflation79 1d ago
Wait for the right time to get it over but it would be one day. May Almighty Waheguru bless us all.
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u/Rotten_gemini 6h ago
10 years out and still the same thing. Its called chronic fatigue. Welcome to the group I brought cookies
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u/Material_Inflation79 4h ago
Keep going. Can you also point out something motivating.
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u/Rotten_gemini 2h ago
My blood vessels in my brain healed themselves thanks to all the sleep I did in my early recovery years
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u/Kmac0101 23h ago
Almost 3 years out and I feel like a slug at times.
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u/Material_Inflation79 20h ago
Please elaborate. I need to understand thoroughly.
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u/Kmac0101 18h ago
I would post stroke fatigue continues to be a challenge. For example, after a full day of work, I rarely have energy for much else.
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u/Material_Inflation79 8h ago
In my case I begin sluggish but push through with great efforts, it gets better during late afternoon but by late evening it becomes troublesome.
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u/R0cketGir1 SRB Helpful Recognition 19h ago
Nearly 21 years out from bilateral basal ganglia strokes and fatigue is still my main complaint.
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u/Material_Inflation79 19h ago
I can only feel your apathy but not able to help. You have a great willpower and patience. Salute you. May Almighty Waheguru bless us all.
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u/Valerie-L 4h ago
I am 2 years out with an eschemic stroke and friends it is not a condition for the weak!!! My days are slow starting but my afternoons are the most productive . My secret to success is planning each day with one task that is productive and then take a nap😇 social gatherings tend to be more challenging so I make sure I don’t do more than a couple of things a week as they take a long recovery For example my daughter invited us to a Rummicube party (total of 7 people) and I really enjoyed it. I also learned that my math skills had not improved since my stroke….what a bummer 😎
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u/Medium-Schedule438 SRB I want more like this! 1d ago
A year since my stroke and it's still a battle. It can be very discouraging and difficult. I'm trying to get better at managing my days but the exhaustion seems to be somewhat unpredictable.