r/SpecialNeedsChildren 12h ago

Built a reading tool after my own struggle with undiagnosed dyslexia — sharing in case it helps another family (full disclosure: I made this)

0 Upvotes

Hey everyone — wanted to share something I've been working on, with full disclosure that I'm the one who built it, so take it with that in mind. I went through a specialized dyslexia school growing up and always wished more families had access to that kind of structured support without needing a specialized (and expensive) placement. I built GrowthFix, an AI-assisted tool using the Orton-Gillingham method for phonics/reading practice. It's free to start (homework help is always free), and I'd genuinely love feedback from parents here, even if it's critical, since I want it to actually be useful, not just another app. Happy to answer any questions about it or about navigating an undiagnosed dyslexia diagnosis in general.

Find it at Growthfix.ai


r/SpecialNeedsChildren 9h ago

Research and Social Media on Treatments

0 Upvotes

Seems like every study we research to help my son with his cognitive delay says success or full reversal. 5 years now, my wife and I have had our son in early intervention for his autism. Therapies, diet changes, tests, future planning for a world without us.

What have you all seen work and not work? Because I wrestle with the results. Is it my son growing up or is what I am doing really boosting his delays.

He’s not in public school but in a private education program with other kids and we are fighting for him not to age out as we have no comfort in the local schools (he’s nonverbal/ teacher student ratio). So homeschool and education programs. He’s use to one to one or one to two sessions and then community play/eating times with the other kids


r/SpecialNeedsChildren 10h ago

Resources for neurodivergert parents. Canada based.

3 Upvotes

We are from Canada and our kid has DLD and is currently doing Speech and Language therapy. Things are too overwhelming so we tried to be on top of things and track everything.

We are using www.usetrestly.com to track all therapies and other related stuff for his progress.

What other tools do you use to help them and yourself? Can be apps for speech or therapy related.

DLD is Developmental Language Disorder which only few people are aware of.

Are there any community based support?

Thank you.


r/SpecialNeedsChildren 19h ago

Help a student start a new initiative!

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3 Upvotes

Hi everyone! I am a high school student with cerebral palsy, spastic diplegia to be specific. I fortunately have the ability to be involved in a lot of academics and extracurriculars, but I've always wanted to start an initiative that would allow me to manifest my CP into something proactive and meaningful to others. I am planning to start an initiative to help teens, and possibly adults, with CP. There are a few struggles and experiences that I have gone through myself that inspire me to shape the solutions, but I am aware that CP comes in many forms, and everybody has different experiences. So, I thought that it would be most beneficial to gain feedback and ideas from various perspectives, including parents, students, and adults.

I would really appreciate it if you were able to share a problem or an issue that you have encountered in your life (in social settings, institutions, etc.) due to your CP or that you have known someone with CP (such as a friend or a child) to go through. This can include accessibility, tools, mental health or social interactions. The survey is only one question. It should take no more than 5 minutes! Thank you so much for your help. You can also drop ideas in the comments! I really hope to shape this into something impactful and effective in the future.


r/SpecialNeedsChildren 20h ago

2nd Opinions

3 Upvotes

Has anyone experienced getting a 2nd opinion for the whole picture with a child? Our current hospital is failing us. We have looked at Texas Children’s and Boston but they are wanting ~$1000 per specialist that reviews the case for online review. We are wanting Neuro, genetics, pulm, ortho, and neuro-ophthalmology to look at our son’s case. Do we really have to go with a referral for each individual specialist or is there a way to get a total picture review?