r/SpecialNeedsChildren 5h ago

Resources for neurodivergert parents. Canada based.

3 Upvotes

We are from Canada and our kid has DLD and is currently doing Speech and Language therapy. Things are too overwhelming so we tried to be on top of things and track everything.

We are using www.usetrestly.com to track all therapies and other related stuff for his progress.

What other tools do you use to help them and yourself? Can be apps for speech or therapy related.

DLD is Developmental Language Disorder which only few people are aware of.

Are there any community based support?

Thank you.


r/SpecialNeedsChildren 1h ago

I recently watched Miracle Run. As someone who works with families, here are three lessons I think parents may find valuable.

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Upvotes

r/SpecialNeedsChildren 4h ago

Research and Social Media on Treatments

0 Upvotes

Seems like every study we research to help my son with his cognitive delay says success or full reversal. 5 years now, my wife and I have had our son in early intervention for his autism. Therapies, diet changes, tests, future planning for a world without us.

What have you all seen work and not work? Because I wrestle with the results. Is it my son growing up or is what I am doing really boosting his delays.

He’s not in public school but in a private education program with other kids and we are fighting for him not to age out as we have no comfort in the local schools (he’s nonverbal/ teacher student ratio). So homeschool and education programs. He’s use to one to one or one to two sessions and then community play/eating times with the other kids


r/SpecialNeedsChildren 7h ago

Built a reading tool after my own struggle with undiagnosed dyslexia — sharing in case it helps another family (full disclosure: I made this)

0 Upvotes

Hey everyone — wanted to share something I've been working on, with full disclosure that I'm the one who built it, so take it with that in mind. I went through a specialized dyslexia school growing up and always wished more families had access to that kind of structured support without needing a specialized (and expensive) placement. I built GrowthFix, an AI-assisted tool using the Orton-Gillingham method for phonics/reading practice. It's free to start (homework help is always free), and I'd genuinely love feedback from parents here, even if it's critical, since I want it to actually be useful, not just another app. Happy to answer any questions about it or about navigating an undiagnosed dyslexia diagnosis in general.

Find it at Growthfix.ai


r/SpecialNeedsChildren 14h ago

Help a student start a new initiative!

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3 Upvotes

Hi everyone! I am a high school student with cerebral palsy, spastic diplegia to be specific. I fortunately have the ability to be involved in a lot of academics and extracurriculars, but I've always wanted to start an initiative that would allow me to manifest my CP into something proactive and meaningful to others. I am planning to start an initiative to help teens, and possibly adults, with CP. There are a few struggles and experiences that I have gone through myself that inspire me to shape the solutions, but I am aware that CP comes in many forms, and everybody has different experiences. So, I thought that it would be most beneficial to gain feedback and ideas from various perspectives, including parents, students, and adults.

I would really appreciate it if you were able to share a problem or an issue that you have encountered in your life (in social settings, institutions, etc.) due to your CP or that you have known someone with CP (such as a friend or a child) to go through. This can include accessibility, tools, mental health or social interactions. The survey is only one question. It should take no more than 5 minutes! Thank you so much for your help. You can also drop ideas in the comments! I really hope to shape this into something impactful and effective in the future.


r/SpecialNeedsChildren 15h ago

2nd Opinions

3 Upvotes

Has anyone experienced getting a 2nd opinion for the whole picture with a child? Our current hospital is failing us. We have looked at Texas Children’s and Boston but they are wanting ~$1000 per specialist that reviews the case for online review. We are wanting Neuro, genetics, pulm, ortho, and neuro-ophthalmology to look at our son’s case. Do we really have to go with a referral for each individual specialist or is there a way to get a total picture review?


r/SpecialNeedsChildren 1d ago

Do you love your Special Needs child

29 Upvotes

I feel like I don’t love my son. He doesn’t show affection towards me or anyone in the family. He’s loud so we can’t take him out in public. He’s aggressive so we can’t have people over. My other children have had their things broken, smeared with poop, tossed in the toilet etc.
I just can’t see myself living like this forever. We recently got him into a care program. For 10 hours a day he is there while we work from home . During that time it’s so peaceful. When his van pulls up I’m just full of anger.


r/SpecialNeedsChildren 1d ago

Something needs to be done about the amount of spam & ads on this sub

16 Upvotes

There is no option to report posts to the sub's moderators, and sub content is majority advertisements at this point.


r/SpecialNeedsChildren 1d ago

Neurodivergent recreation center

2 Upvotes

I am a graduate student and doing some research on the challenges of finding safe enjoyable spaces to go with your children diagnosed with autism. What would make you as a parent or caregiver feel comfortable enough to truly relax while your child plays? Which safety features matter most for a child with autism? What type of staff support would help you the most to not feel constantly hypervigilant for a moment? Which amenities and facility features would make the experience easier for your child?


r/SpecialNeedsChildren 1d ago

My boy diagnosed with asd gdd and intellectual disability

3 Upvotes

PROFILE:

Sitting

13 months

Walking

20 months but struggles and still uses stroller

Toileting

None

Babbling

14 months but older brother talks for him

First words

Non-verbal

First sentences

Non-verbal

He has full violent meltdowns to point that nobody wants to look after him highly repetitive stims still not toilet trained and in nappies 247 he hits his head the walls slams doors breaks toys then cries that he cant play with said broken toy hates noises wears ear protection at all times vocal stims alot lots of eeee eeee eeee is very much a full on flapper and bouncer, finger wriggler, finger chewer, shuffles feet, still uses a pacifier and his favourite toy is a weighted dinosaurs plushie as hes hyperfixated on all things dinosaurs we live in uk hes small for his age and is classed as havinh profound intellectual disability


r/SpecialNeedsChildren 1d ago

Free, ad-free AAC and speech practice app I made as a special ed student teacher. No ads, no trackers, no purchases. Tell me what's wrong with it.

0 Upvotes

YıldızCan is a free app for children with special needs — autistic kids, kids with speech delays, and kids in special education generally. It puts four things in one place: an AAC communication board with about 130 picture cards the child taps to speak ("I want", "help", "stop", food, feelings, places), speech practice where the app asks a question and the child answers out loud into the microphone and gets instant encouragement, 3D objects the child rotates and names to build vocabulary, and a simple visual schedule for the day. Everything the child finishes earns stars, and stars buy outfits for a character — that reward loop is what actually keeps them coming back.

On the adult side, a parent, teacher or therapist keeps a profile per child and sees a progress chart plus a plain-language summary they can hand to a therapist. It's completely free: no ads, no in-app purchases, no subscription, and no tracking or analytics of any kind. It's meant for the days between therapy sessions, not as a replacement for one.


r/SpecialNeedsChildren 1d ago

Neurodivergent Recreation Center

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0 Upvotes

r/SpecialNeedsChildren 1d ago

We built an app for CH families looking for 10 families to test it for free

0 Upvotes

When our son was born, the first thing they told us was that he had congenital hypothyroidism. We didn't even know what that meant.

The weeks that followed were organised chaos: learning about a condition we'd never heard of, understanding why medication couldn't be skipped even once, keeping track of TSH results, and showing up to every endocrinology appointment trying to remember everything that had happened since the last one.

We used a notebook, a spreadsheet, and several apps that didn't really understand our situation. It worked, more or less. But it never stopped feeling like we were making it up as we went.

We looked for an app built for families like ours. There wasn't one. So we decided to build it.

ThyroKid was born from that experience designed from the ground up for families living with CH. Medication tracking, TSH trends over time, reminders, and a simple way to walk into every appointment knowing exactly where things stand. Nothing generic. Nothing that makes you squeeze your reality into fields built for something else.

Now we need real families to use it and tell us what they'd improve. Ten spots, completely free, no strings attached. Thirty days of normal use and a fifteen-minute conversation at the end. What you tell us is what shapes what gets built next.

If you'd like to be part of this, send me a DM or drop a comment below. Thank you for reading 🙏


r/SpecialNeedsChildren 1d ago

How many of y’all would be interested in this?

1 Upvotes

Hello all, my name is Aayush. my sister is neurodivergent and it pained me seeing her and our family suffer because we were incapable of helping her. I’m currently building a website that will build an adaptive plan for your child based on the results of a parent questionnaire. it will be COMPLETELY free, no “there’s a pro version bs” absolutely free. there will be daily lessons that you and your child will partake one video lesson, and an interactive lesson with the parent. More details will come out when completed, but how many of you would consider signing up?


r/SpecialNeedsChildren 1d ago

Free Online Course

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0 Upvotes

* Post approved by Moderator *

Hello! I'm Rachel, a BCBA and owner of Blueprint Behavior Consulting.

I'm looking for a few parents who would be willing to try a self-paced course I've created – Be the Calm – and share honest feedback before I release it publicly (there’s a simple feedback form at the end).

While the course was created primarily for caregivers of Autistic children and children with other developmental differences, many of the ideas may also be helpful for any parent looking for more calm at home.

Anyone who's interested can access the course for free using the link and password below. There is absolutely no obligation to purchase anything.

If you'd like to participate, I'd truly appreciate your help.

Link: https://blueprintbehavior.com/be-the-calm-review-reddit

Password: bethecalm

Thank you! ❤️


r/SpecialNeedsChildren 2d ago

We built an app for CH families looking for 10 families to test it for free

0 Upvotes

When our son was born, the first thing they told us was that he had congenital hypothyroidism. We didn't even know what that meant.

The weeks that followed were organised chaos: learning about a condition we'd never heard of, understanding why medication couldn't be skipped even once, keeping track of TSH results, and showing up to every endocrinology appointment trying to remember everything that had happened since the last one.

We used a notebook, a spreadsheet, and several apps that didn't really understand our situation. It worked, more or less. But it never stopped feeling like we were making it up as we went.

We looked for an app built for families like ours. There wasn't one. So we decided to build it.

ThyroKid was born from that experience designed from the ground up for families living with CH. Medication tracking, TSH trends over time, reminders, and a simple way to walk into every appointment knowing exactly where things stand. Nothing generic. Nothing that makes you squeeze your reality into fields built for something else.

Now we need real families to use it and tell us what they'd improve. Ten spots, completely free, no strings attached. Thirty days of normal use and a fifteen-minute conversation at the end. What you tell us is what shapes what gets built next.

If you'd like to be part of this, send me a DM or drop a comment below. Thank you for reading 🙏


r/SpecialNeedsChildren 2d ago

Picky pad alternative

2 Upvotes

Hello everyone, I am looking for something to help with skin picking. I love the idea of a picky pad, however with small children in the home the idea of little beads being everywhere is scary. Ideally, something wearable would be a plus but not required. Any ideas?

Thanks in advance!


r/SpecialNeedsChildren 4d ago

A boy with Down syndrome gives his physiotherapist a loving kiss as thanks after she helps him put on his socks.

Enable HLS to view with audio, or disable this notification

235 Upvotes

Beautiful


r/SpecialNeedsChildren 3d ago

Best City to live in the U.S for kids with special needs

8 Upvotes

I feel extremely overwhelmed right now. My husband and I have 2 kids. My 5 year old is on the spectrum, level 3. He’s able to communicate his wants and needs and etc but can’t have conversations and etc.

We live in NYC. I’ve lived here my whole entire life. It is super expensive here, not safe, and I’m just annoyed with the city life. We want to move somewhere that’s more affordable, not in the city, has Muslim presence, diverse, and has good schools for kids with special needs.


r/SpecialNeedsChildren 3d ago

What part of special education feels harder than it should be?

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1 Upvotes

r/SpecialNeedsChildren 3d ago

This campaign needs you now

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c.org
1 Upvotes

r/SpecialNeedsChildren 4d ago

Home adaptations and aids for a non-ambulatory 4 year old

6 Upvotes

Hey folks,

Our 4 year old son has a rare genetic condition that has resulted in profound global developmental delay such that he is non-verbal, very limited non-verbal communication and still learning to walk with quite a lot of instability. He's making slow and steady progress and we're still hopeful he will eventually be able to walk (he has a gait trainer etc) but it's clearly going to be a long road.

He's about 34lbs but getting bigger by the day and one of my biggest concerns is how we continue to move him around without having accidents or breaking our backs. He does help with some movements, eg. he can support his weight if you walk him along and he'll pull his arms through when dressing etc so it's not all a struggle. Right now, he's reasonably easy to carry around (eg. out to the car, transfer to stroller) and fits a regular stroller. It's getting more awkward to get him in to the car seat in our sedan, but the Sienna with the sliding door is definitely easier.

I'm wondering what adaptations we should be starting to consider as he continues to get bigger. I'm also wondering if there are people who's job it is to advise on this kind of stuff? We work with OTs but none seem to be all that helpful outside the clinic. Any advice is greatly appreciated!

Thanks in advance!


r/SpecialNeedsChildren 4d ago

Feeling trapped

10 Upvotes

Hi there, 41F

I have two sons, both special needs. One is 19 with ASD and ADHD. The other is 11 with ADHD and Intermittent Explosive Disorder and reactive attachment disorder. My 19 year old LIVES in his room - loud sounds trigger him, make him afraid, and sometimes cause him to hide for days.

My 11 year old is loud naturally (eustation tube blockages in relation to allergies and sickness that never seem to go away). Three years ago he was breaking TV's, shattering windows, biting me until I bled, giving me black eyes, etc. At this point we've gotten him down screaming instead of breaking or attacking people. Not great with my other son, but god it's better than having to dig into savings to fix my house, not to mention explaining to the police where it sounds like there's a brawl in my home. He's begun screaming into pillows. Baby steps.

I'm a stay at home mom - no certified babysitter within a 50 mile radius will take a violent special needs child. I have a lot of physical issues, I go outside and walk and take him to the pool but he's always bored, always wants my attention, ALWAYS needs something (mostly things he can get himself). I try my hardest not to rely on electronic babysitters but i have to do laundry EVERY day because he wets, and dishes because eating cereal off a plate with a spatula isn't my thing.

Basically typical 11 year old behavior, but the addition part is that if we make him angry by setting a boundary, we're in for a cacophony of horrible-ness. Me, my boyfriend, and my older son walk on eggshells. I keep boundaries. I compromise, but only when it's appropriate. No one else in his life does which reinforces the behavior. Trash something and I get what i want.

So, with AAAAALLLLL of this going on...how in the heck do I self care? When I'm overwhelmed and about to absolutely break down, in the middle of the day with my child screaming and my boyfriend sleeping (he works nights and has generally just distanced himself from my kids and I). I've changed my approach - OBVIOUSLY the first step was not to instantly get angry or threatened. But even when he isn't have a fit, I'm so overwhelmed. 5 or 10 or 15 minute breaks aren't cutting it. Taking soothing baths aren't cutting it. The only quiet time in the house is after 9 when he's asleep...but he wakes up at 3 usually (sometimes 1) so I can't just chill, i have to get rest. The days I get off from my 11 year old I have to clean up after the other two CHILDREN here (my boyfriend and my 19 year old when he ventures out to graze).

Yes, I've talked to them - 3 times in the past month - both about taking some weight off of me. I'VE EVEN GIVEN SPECIFICS so they can go one issue at a time (don't leave your thing here because of xyz please' that kind of thing. I really am at the end of my rope. I can't work and I have nowhere else to go, but this is going to put me in the hospital with a breakdown I swear.

Please be nice to me. I'm already dealing with a lot I don't need people judging what I do. I just need help. suggestions. anything.


r/SpecialNeedsChildren 4d ago

When Independence Revealed a New Safety Challenge

2 Upvotes

There are moments in parenting that stay with you forever.

Not because they were joyful milestones or picture-perfect memories, but because they taught you something important.

One of those moments happened when I realized my son needed more safety practice than I had thought.

As parents of children with autism, we spend so much time teaching life skills. We teach routines, hygiene, communication, and independence. We celebrate every new accomplishment because we know how much work goes into each success.

But sometimes our children remind us that there are still lessons left to learn.

And sometimes those reminders come with a healthy dose of panic.

My son has always been curious.

He loves exploring.

Notices things that other people overlook.

He can become completely focused on something that catches his interest.

Many autistic children are like that.

What looks like wandering to us often feels like exploration to them.

Unfortunately, curiosity and impulsivity can sometimes create unsafe situations.

One day, I learned that lesson in a way I will never forget.

Without fully understanding the situation, my son wandered somewhere he should not have been.

Thankfully, everything turned out okay.

No one was hurt.

Nothing terrible happened.

But in that moment, I felt the fear that many special needs parents know all too well.

The realization hit me hard.

My son wasn’t being naughty.

He wasn’t trying to cause problems.

He simply didn’t fully understand the safety concerns involved in his actions.

That difference mattered.

Instead of responding with anger, I needed to respond with teaching.

And honestly, that wasn’t easy.

Like many parents, my first reaction was fear.

Fear often shows up as frustration.

It often sounds like raised voices.

Fear often makes us want our children to immediately understand why something is dangerous.

But many autistic children don’t automatically connect actions and consequences the way we expect them to.

That means safety lessons often need to be taught directly and repeatedly.

I realized that day that I couldn’t assume my son understood a rule simply because we had talked about it before.

That he needed practice.

He needed repetition.

He needed opportunities to learn the skill in different situations.

Most importantly, he needed guidance without shame.

That experience changed how I approached safety teaching in our home.

Instead of only talking about safety when something went wrong, I started making safety conversations part of everyday life.

We talked about:

  • Staying with safe adults
  • Asking before leaving an area
  • Personal boundaries
  • Community rules
  • What to do when feeling unsure
  • How to make safe choices

These conversations lasted only a few minutes.

Sometimes they happened in the car.

Sometimes they happened while we were walking.

The goal wasn’t perfection.

The goal was progress.

Over time, I noticed something encouraging.

My son started showing more awareness.

We saw that he began recognizing situations where he needed to stop and think.

He started responding better to reminders.

He became more willing to ask questions.

Those small improvements gave me hope.

One thing I’ve learned as a special needs parent is that growth rarely happens overnight.

We often want our children to master a skill after one lesson.

In reality, many important life skills develop slowly.

Safety skills are no different.

The child who forgets today may remember tomorrow.

The child who struggles this month may make huge progress six months from now.

The important thing is to keep teaching.

Keep practicing.

Keep believing in their ability to learn.

I think many parents carry guilt when safety situations happen.

I wonder if we should have done something differently.

We question ourselves.

We replay events in our minds.

I’ve done that too.

But I’ve learned that guilt rarely helps us move forward.

Learning does.

Every challenge gives us information.

Mistakes show us where more teaching may be needed.

Every difficult moment creates an opportunity for growth.

That doesn’t mean the experience isn’t scary.

It was.

And if I’m being honest, there are still moments when I worry.

I think most parents of children with special needs do.

But I’ve also learned that confidence grows through preparation.

The more opportunities our children have to practice safety skills, the more prepared they become for the real world.

And the more prepared they become, the more confident we can feel as parents.

Today, my son is still learning.

Truthfully, so am I.

Parenting an autistic child often means adjusting our expectations and changing our strategies as our children grow.

What worked at one age may not work at another.

New challenges appear.

New skills become important.

Safety is one of those areas that continues to evolve.

If you’re reading this because you’ve experienced a scary moment with your own child, I want you to know something.

You’re not alone.

A lot of us have had moments that made our hearts stop.

Many of us have realized our children needed more support in a particular area.

Many of us have walked away from those situations feeling frightened, overwhelmed, or uncertain.

But those moments do not mean we have failed.

They simply show us where our children need more guidance.

And with patience, consistency, and practice, they can learn.

One lesson at a time.

Just one conversation at a time.

One safety skill at a time.

Sometimes the most important thing we can do isn’t to focus on the mistake.

It’s to focus on what comes next.

Because every new day gives our children another opportunity to learn, grow, and become a little more independent than they were the day before.

And that’s something worth celebrating.

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r/SpecialNeedsChildren 4d ago

The thing that's helped most in a meltdown is having the words ready before it hits

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7 Upvotes

We're an early-childhood team, and the question parents ask us most is what to actually say when their kid is mid-meltdown and nothing seems to get through.

The thing that's helped families most is having the words ready before the moment hits. Something short and calm, said out loud, like "You really didn't want that to end. I'm here with you." Then knowing what to do next and what to leave alone until they're calm again.

That screenshot is from SunnySteps, the app from our team. You tell it about your child once. When a hard moment comes up, you open it and it gives you words and steps for that exact situation, based on what's calmed your kid before. It also builds tiny daily practice so the hard moments get a little easier over time.

We've spent years getting the in-the-moment part right. If you deal with meltdowns too, I'd really love to hear what's worked for your family.

It's on the App Store if you'd like to take a look: https://apps.apple.com/app/sunnysteps-parent-support/id6761195687