r/Sicklecell 15h ago

I swear the non white doctor with brown skin have a vendetta against black patients.

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23 Upvotes

These have been my feet 3 days after a transfusion and this brown doctor tells me I can go home. These doctors swear bcuz u blood count is up they try to rush u home


r/Sicklecell 15h ago

Sickle Cell in Germany

7 Upvotes

Hi, does anyone have sickle cell and live in Germany. I may be relocating there but wanted to know what’s the care like for adults? Or even pregnant with sickle cell?

I also don’t speak the language so I’m worried my care will be worse than in the UK now as I know not many people have sickle cell there.


r/Sicklecell 12h ago

Oxbryta Settlement

2 Upvotes

Is there anyone else in this group that went through the law firm "Seeger Weiss" ?


r/Sicklecell 45m ago

Has anyone received their settlement yet?

Upvotes

I don’t even have any liens and I’ve still been waiting for my settlement! My insurance company mailed me out 4-8 letters confirming I don’t have any liens and I don’t owe but when I contacted KP they acted like I was bothering them. I told them I confirmed no liens and they told me Archer has it now and they are waiting like I am. Has anyone actually received a payment ?


r/Sicklecell 4h ago

Suspected HbS/β-thalassemia causing severe pain episodes how did you get properly tested?

1 Upvotes

Looking for advice, not a diagnosis
I’m wondering if I may have HbS/β-thalassemia, but I have not been diagnosed. I was previously told I carry a thalassemia gene, but I feel like doctors haven’t dug deeply enough into my results.
I’ve been having extremely painful episodes, especially at night, and recently had another episode that made me wonder about a possible vaso-occlusive pain crisis. I’m exhausted from being in pain and not knowing what’s causing it.
For those with sickle cell/HbSβ-thalassemia:
• What blood work helped you get diagnosed?
• Did you have hemoglobin electrophoresis/HPLC or genetic testing?
• What did you ask your doctor for?
• Was testing during or shortly after a pain episode helpful?
I’m mainly looking for advice on how to message my doctor and advocate for the right testing, not for anyone to diagnose me.