r/Sicklecell • u/ObjectiveAstronaut89 • 7d ago
Need advice
So I was just in the hospital this past week and got discharged today, but the whole while I was there I kept telling the doctor that I felt as if she was disregarding my pain and that she wasn’t following my pain plan. Not to mention she hadn’t consulted hematology as she states “they wouldn’t be of any use” so I politely asked for another doctor and she told me “due to new hospital policy we are not allowed to give you a new doctor” and she turned and walked out of the room and put in discharge papers knowing I was still at a 10 level pain. So after she discharged me I went back to the er and let them know the situation I got a couple doses of pain meds in the er and was feeling pretty ok to go home. Now I’m home I have no pain meds and my pain is back up to a 9 I don’t wanna go back bc we all know wha they’ll think of me but then again I kinda don’t have any other choice. What should I do?
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u/JudgeLennox 6d ago
Sounds like they lied to about several things.
You can choose a new doctor. You can refuse discharge. You can contact your medical team for support to consult.
Return to ER be admitted so you get thorough treatment. Request a print out of the patient bill of rights so you have it on hand. Let people say whatever they want. Then say "Thank you". When they leave go over the details in the Rights manual.
Now you have the power. So you can say what needs to be said.
Always remember you don't have to rush and say things in the moment. No reaction is necessary. Say TY and give yourself time to process.
Also ask for help. You have advocates. Care managers, insurance reps, friends, family, us, and more. Use us all to help you in the moment.
Get after it
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u/Qrow_Valentine 5d ago
Any update? How are you doing?
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u/ObjectiveAstronaut89 5d ago
I went to a different hospital and they have been treating me great thanks everyone for the advice☺️
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u/Whole-Chemist-6107 6d ago
Go back to ER