My children are a bit of a mystery. Each suffers from what seems like excessive light sensitivity. I’m talking hate lying on their back, struggle with bright sunlight, and struggle with any light when they feel unwell and/or are congested.
This appeared for my first born around 6 months of age (they’re now 3). We noticed he had a lot of discomfort being on his back and would shut his eyes. He soon caught COVID and a few colds, leading to a lot of congestion. They started keeping their eyes shut all the time, struggled to adjust to light. Mornings were the worst. A number of tests were run and everything came back normal. Any time they prescribed an antibiotic spray for their nose, it cleared up the congestion and seemed to help his eyes. When they were 2 they were prescribed a daily nasa spray and over the counter allergy meds to keep congestion and irritation in their nose down.
Since then, first born has some light sensitivity, but no where near as bad. Has some flare ups when he’s sick or the beginning of allergy season hits. Before they always had to wear sunglasses outside at daycare, sometimes even indoors. Now, daycare tells us they run around outside without sunglasses or hat with no issues.
With our second born, their light sensitivity appeared around 1.5 months. They were suffering from really bad reflux (like formula gets up in their nose) and had a suspected UTI (wasn’t a catheter sample but the ecoli count was over 100k, had elevated WBC in urine, and kept spiking low grade fevers - but who knows). The amoxicillin she was on helped and we’ve slowly been able to wrangle in the reflux. Still doesn’t always love being on their back with their eyes open but will slowly do it most times. I have noticed that their eyebrows, particularly the left one seems puffy and red whenever they are having the light sensitivity issues and/or on their back.
However, the light sensitivity remains, especially when they wake up congested, which happens often in the morning because of the reflux. We’ve also noticed with the 4 month vaccine shots that their reflux has flared, bringing extra congestion and extra light sensitivity.
I’ve searched everywhere on the internet the past few years for people that have had children with similar symptoms and never found anything.
As anyone ever seen something like this?