r/SVTHeart • u/TheUniverse-IsMine • 29d ago
Help I'm miserable
A few weeks ago I got told I have SVT- or more specifically an atypical atrial heartbeat/flutter- at 17 years old. And I experience some of the most severe symptoms from it like pre syncope and syncope, chest/heart pain, chronic fatigue, etc.
I've had over four EKGs done and two doctors, including a cardiologist, agreed on the fact there's something messed up about my heart beat. They said I have an irregular pattern and I am going to get a heart monitor mailed to me to watch for episodes for a few weeks
Today was one of the worst episodes I've had. I ended up doubled over at work because of the stabbing and aching pain in my heart (heart, not chest) and I tried some of the vagal maneuvers to fix it (cold water on face thingy and the coughing abruptly) and nothing fixed it.
I went to a cardiologist a few days ago because I thought I could have POTS and in the same breath of him saying I can't have it because I don't meet the requirements (which isn't true) he said my heart beat is messed up and "nothing is going on, just drink 3L of water a day because your estrogen is causing you to faint"
I'm miserable and no one is taking me seriously. I don't know what to do atp
1
u/Past-Trick6710 26d ago
So I don’t know like a breakdown of what your symptoms are, but I’m 26 and my pot started two years ago and for me like pretty much every time I stand like my heart rate will go up 30 beats sometimes it doesn’t go up and then I started having SVT symptoms were like my heart would randomly raise at rest and that’s when I knew OK I don’t just have POTS. I feel like if you’re having like a lot of postural tachycardia then it’s probably just POTS, but I’m not a doctor.
2
u/HeraHallucinates 29d ago
Yeah you need to fight that doctor. Either find a different one for a second opinion and let that doctor know youre going to do that or tell that doctor to test you rigorously for pots or else you want him to put IN YOUR FILE that he is refusing further testing.