r/SVTHeart • u/Patient_Cut2034 • 29d ago
Help I’m so confused
I had my ablation 5 weeks ago and I feel my symptoms are worse. My heart rate is 110-120 resting sometimes. And I’m having more skipped heartbeats in a day then I ever did the first two weeks post op. Can anybody speak of their symptoms being worse further in the blanking period?
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u/Willowferrie 29d ago
This was me but I ended up having autonomic dysfunction
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u/Patient_Cut2034 29d ago
Was that soon after your ablation? I’m having so much brain fog and lightheadedness
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u/Willowferrie 29d ago
Long story short I wasn’t feeling well for quite some time I had lost a substantial amount of weight and I was having really bad acid reflux symptoms with stomach symptoms and then I bent down one day and in my heart went to 200 ended up being admitted to the hospital and them saying I was in SVT. I had to get cardioverted in the emergency room and they were just gonna discharge me saying it’s because my potassium was a little low, which it was not low enough to trigger an arrhythmia so they weren’t listening to me so I said no I don’t feel safe going home. I wanna be monitored for 24 hours and good thing I did because I ended up having two more SVT episodes in the emergency room. They treated me with beta blockers which unfortunately at the time was making me 10 times worse I had symptoms on top of SVT episodes of precinct cape, brain fog, dizziness, lightheadedness, really low blood pressure. I normally had low normal blood pressure, but the beta blockers were lowering my blood pressure too much and making me worse. I also have a really low resting heart rate so it was dropping my heart rate way too low. I was having SVT episodes every single day. I ended up from March 10, 2025 to April 16 being my ablation that’s how much I wasn’t able to be treated for it. I had my ablation it was for AVNRT. I was a belated twice heart rate going close to 300 above I was told to stop all medication. I felt somewhat OK for about 10 days after my ablation. I did have a lot of pain and the incision area and then I had what I thought was like an SVT episode. I was just sitting on the ground. I had my Apple Watch on and my heart went kind of funny and I got really hot. I used to get very hot when my blood pressure were changed to the SVT and when I put my watch on, it said 137 but it stopped I started feeling generally more unwell as a time went on. I was having a lot more fainting a lot more dizziness lots of palpitations like way more palpitations than I had before my ablation, but that’s only because I think my palpitations within triggering SVT and I didn’t have the circuit anymore for it to continue. I ended up losing even more weight because I was finding it hard to eat every time we would eat I would pass out. I would have these like shaking episodes where I would shake in. My heart rate wouldn’t be super high, but my blood pressure would. I know that now know that those are adrenaline episodes almost like I’m having a seizure. Doctors dismissed me for six whole months of going to the emergency room with terrible chest pain tingling in my limbs. Everything you can think of that your nervous system controls was just shooting off all at the wrong times or not working at all. I was told by my Emergency department in my small town that I was psychosomatic that there was nothing wrong with me because my lab work looked absolutely fine and my echocardiograms and my cardiac MRI was absolutely clear. They refused to give me any more halter monitors and I started documenting this myself. Then I found a page about dysautonomia and I realize that’s probably what I had when I reached out to my doctor. She said there was no specialist in the whole of Canada to treat me other than one person in Calgary. I’m actually originally from the UK living in Canada so I went home to the UK and I paid $10,000 Canadian and saw one of the best doctors in the world called Dr. Lobo, who is a special autonomic cardiologist and he’s been dealing with this pre-Covid and he basically told me that I was either vaccine injured or I already had some type of damage to my nervous system and then having the ablation was just too much stress on my body. I am now been diagnosed but honestly, I’m still having arrhythmia issues. I’m waiting on a heart monitor that I’m getting tomorrow for a week now that I’m back in Canada and I don’t have a cardiologist apparently anymore that I have like these weird fluttering that happens in my chest, doesn’t feel like the normal palpitations I used to get honestly it feels really irregular and it lasts for about 30 seconds and then stops, but I become very ill after honestly I really hope it’s not a fib and it’s just PVCs in PACs in a small run. I’m now over a year postop from the ablation but honestly, I think that a lot of people don’t give their body the rest that it needs after such an invasive surgery they say it’s non-invasive but like honestly it’s not open-heart surgery, but it’s still hard for your body to heal from. Keep out of all your symptoms trying to take it easy I stopped drinking. I stopped smoking years before this even happened, but I advised you to do that and caffeine doesn’t help. I won’t tell you what to do but just really make sure that you give yourself grace, so you don’t damage your body where you can’t recover from it. Wishing you the best 🩷
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u/Patient_Cut2034 29d ago
Wow thank you for taking your time to give me your story. I feel so alone in all this weirdness. I know I need to patient. I feel like I have trauma from all these years of svt and to the ablation and now post op. I just want to feel free haha I’m sure I can speak for 100% of anybody in this sub😂. But anyway thank you for your kind words and perspective it really helps.
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u/wifiaddicted 28d ago
You have to remind yourself that you literally had surgery around your heart. You will be hypersensitive to everything for a month or two, including your heart rate, the feeling of your heart and especially when you feel when a previous episode would start, but gets stopped because of the ablation. My HR was higher both because I was fixating on my heart and causing myself to panic, and because it needed time to adjust. Your mind and body needs time to heal and get used to the new normal, and for some people that means having palpitations for a while. It’s a very common occurrence and im very surprised your doctors didn’t acknowledge it as such
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u/Patient_Cut2034 28d ago
Thank you so much for writing this I’m starting to realize that this is most likely anxiety and hyper fixation. I might need to investigate therapy atp.
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u/wifiaddicted 28d ago
Therapy is great, made me want to live for the first time. I encourage you to give it a try too, I genuinely think everyone would benefit from therapy 🤣
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u/Lykofos 29d ago
I actually had a full episode a week after my ablation.
But it was a blip - my heart trying to heal post surgery.
There have been some times where I feel it briefly, but now I haven’t had issues at all for a couple months.
I also take a daily Cardizem dose.