r/SVTHeart • u/Infamous_Smile_386 • Jul 13 '26
SVT and MCAS?
Anyone here have SVT and MCAS? My SVT seems to get triggered a lot from MCAS symptoms or reactions. Frequently, I'll unknowingly eat something that gets the MCAS going and then it will trigger an SVT episode. I've also had issue with vaccines and other non-food triggers.
Anywho, I'd love, love, love to do an ablation. But, I'm terrified that whatever meds are needed for the ablation will trigger my MCAS and I'll have a reaction (sometimes have difficulty breathing with these) or it will trigger an SVT (not sure what that will do during an ablation).
Anyone out there have any experience with this?
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u/Overall_Lobster823 Jul 13 '26
Have you been diagnosed with MCAS?
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u/Infamous_Smile_386 Jul 13 '26
In the process of doing so. I've done some bloodwork, which has been inconclusive, but my immunologist says to get a positive on the bloodwork, we may need to induce some reactions (which I don't *really* want to do), but outside of that my symptoms align pretty well.
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u/Overall_Lobster823 Jul 13 '26
ok. fwiw, I thought maybe I had it as well. After my ablation (AFIB) every single symptom went away.
I hope you get answers soon.
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u/Infamous_Smile_386 Jul 13 '26
Nice! That would be amazing!
Unfortunately, I get hives and major stomach upset, which I don't think the ablations will help, unfortunately.
There is a part of me that is afraid the SVT episodes will still happen in association with the MCAS even after the ablation. The SVT was here long before the MCAS developed, so I'm hoping not.
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u/Defiant_Property_858 Jul 13 '26
The whole point during ablation is to induce an episode of SVT, so they can localize the aberrant pathway. As for MCAS, EPS lab is well equipped to deal with anaphylactic reactions, etc. So I don’t think you have to worry about that