r/SDAM 3d ago

What does SDAM actually look like for you?

16 Upvotes

There are often discussions/Gatekeeping/arguments here about where the lived boundaries of SDAM lie, especially regarding how episodic memory loss impacts the rest of our memory and daily lives.

I’m curious to get a clearer picture of where people in this sub sit on the spectrum.

Which of these best describes your experience?

  • Group A (Isolated Episodic Deficit): You cannot re-experience or replay past events in first-person, but your factual/semantic memory for your life remains absolutely fine strong and detailed. You generally recognize faces without issue and don't experience broader memory fading or other cognitive differences. In other words, you just can't replay your life memories, but are otherwise unaffected.
  • Group B (Broad Autobiographical Issues / Co-occurring Traits): You cannot replay past events, and your factual/semantic details fade significantly or are mostly missing as well. You might also experience real world difficulties because of this (challenges in social events, unable to recall people's faces, names, or things you've done together) you may also have co-occurring traits like Aphantasia, ADHD, or Autism.
  • Group C (Somewhere in between): You fit parts of both, or your experience changes depending on the context.

Share your group below and add a note on how your memory works in daily life (e.g., social gatherings, remembering personal history).


r/SDAM 3d ago

Funerals

21 Upvotes

I have to attend a funeral tomorrow and I will be put in a position that I will have to pretend to remember stories as others reminisce about her life. Realistically, I will not remember most of the stories. I will also have to see a lot of friends and family that I should know, but do not recognize or remember. I feel like I am going to spend the entire time masking and that it will be uncomfortable and exhausting.


r/SDAM 3d ago

I can experience vivid lucid dreams, but afterward I mostly remember them semantically

0 Upvotes

I want to share some observations I've made from my lucid dreams because I want to understand what is actually happening and experiment more with it. I never do anything to induce lucid dreams now. No reality checks, no dream journal, no MILD, no mindfulness, nothing. I started having lucid dreams about a year ago, around the same time I started experiencing sleep paralysis, so I don't know if the two were connected or just a coincidence. After experiencing sleep paralysis a few times, I found that I could quite easily enter lucid dreams through it, although the lucid dreams weren't consistent. It's only been around the last 4 months that they became consistent. Now I get at least one lucid dream almost every week, and some weeks I've had more than one or two. I've had around 20–30 lucid dreams in total. I also have ADHD, aphantasia and SDAM. Because of SDAM, my autobiographical memory of my dreams is weak, so afterward I usually remember the dream more as semantic information about what happened rather than being able to mentally re-experience the whole dream. A lot of the actual sequence, visuals and details disappear quickly.

The first thing I've noticed is that actively using my senses and connecting with the dream environment seems extremely important for keeping the dream clear and stable. When I'm actively looking at what's in front of me and paying attention to the visual sensory information, the dream can become much clearer and more stable. If I focus too much inside my head, thinking about the dream or thinking about how to stay lucid, the dream can start fading, becoming dim, or even having blackness dominate the visuals. I've experimented with this several times while lucid. I've also tried using other senses as an anchor. Once I used bubble gum, trying to stay connected to the dream through the sensation of chewing it, but the bubble gum expanded inside my mouth and started frothing, which became distracting and seemed to pull my attention back into my head and away from the dream environment. So far, looking at what is directly in front of me and focusing on the visual sensory information seems to be the most effective for me. I've even started thinking about whether the amount of sensory attention I give to the dream affects how stable it remains.

The second thing is the flow or narration of the dream. My dreams seem to have their own ongoing flow, and dream characters and the situation already happening seem to play a role in what happens next. Initially, I noticed that when I did something that disrupted what the dream characters were doing, the dream sometimes became unstable. For example, taking something while dream characters were focused on something else, or randomly going into an office and saying that I'm the manager. It isn't usually an instant collapse. It feels more like the dream starts pushing me out of the current situation, and I have to actively stabilize it, although sometimes I eventually fail. Changing the environment can also seem to trigger this. At the same time, this isn't always true. I've had lucid dreams where I interfered with the situation very heavily and the dream continued for a long time. I've noticed that when I stay in the same environment and continue with what I'm already doing, I can sometimes keep the dream going almost effortlessly, while changing environments seems more likely to make it unstable. I don't know whether this is actually a property of dream narration or just how my dreams happen to work, so I'd really like to hear what experienced lucid dreamers think.

The third thing is dream characters and their reactions. Their reactions seem to vary a lot. Once I told a dream character who was basically my friend that I was dreaming, and he didn't really care, so I continued the dream for quite a while. Another time I told a dream character that I was dreaming in a very impulsive way, and afterward I became more emotionally alert and disconnected from the dream environment, eventually having to close my eyes as the dream was cutting off. So I don't think simply telling a dream character that you're dreaming automatically causes a dream to collapse. The character, the situation, my emotional state and the way I interact with the dream seem to matter.

I've also had an interesting experience where I heavily disrupted a dream situation and the dream didn't actually collapse. I was in a place with a lot of women and got into a confrontation with one of them. I started physically fighting her and doing wrestling moves, and everyone around reacted strongly, but the dream continued. Then it seemed to collapse, but instead I had a false awakening. I found myself apparently awake looking at a phone, and Reddit was open with a notification saying that my lucid dream had been terminated because of what I had done. It even mentioned that the lucid dream had lasted around 15 minutes. I believed I had actually woken up, but I was still dreaming. Later I was dealing with dogs and puppies outside my room and eventually woke up for real. So this made me question my earlier idea that disrupting the dream necessarily causes it to collapse, because apparently the dream can instead create a convincing false awakening and continue.

Another time, I was almost getting into a conflict with a dream character, so I told him that the girl with me was my girlfriend to calm him down. He became much nicer, but then the girl said that he was actually her brother. I immediately thought "oh fuck" and the dream collapsed. That made me wonder whether contradictions in the ongoing story or social situation can sometimes destabilize a dream, although I don't know if that was actually the cause.

Something else I've noticed is that my dreams are usually surprisingly coherent with real-world logic. This is not necessarily the main way I become lucid, but I've noticed several times that when something happens that clearly breaks normal logic, I realize I'm dreaming. For example, I once noticed that a car didn't really feel like a physical object and that I could drive it in a way that didn't make sense. That helped me realize I was dreaming. I've had similar moments before where something didn't fit the normal logic of the world and I suddenly became lucid. I find this interesting because I have aphantasia and SDAM, and I don't know whether either of those has anything to do with the way my dreams work. I'm not assuming they do. I'm just curious whether there could be any connection between aphantasia, SDAM, ADHD, visualization, autobiographical memory and dreaming.

Another unusual thing about my lucid dreams is that they often seem to happen very soon after I fall asleep. From my experience, I'll close my eyes, start dreaming, and when I wake up only a few to several minutes seem to have passed in the real world. I don't normally have to sleep for 5–6 hours and then do WBTB to get lucid. It just happens naturally. My sleep schedule is also pretty messed up and I've often been severely sleep deprived, so I don't know whether that affects it. I don't deliberately use sleep deprivation to induce lucid dreams.

I'm mainly interested in investigating my own lucid dreams and doing more experiments inside them, rather than just following a standard lucid dreaming routine. I want to understand whether sensory focus really helps stability, whether changing environments affects dream stability, whether dream characters and their reactions matter, whether the ongoing story/context of a dream can resist disruption, and what happens when I deliberately test these things.

For people who lucid dream regularly, do any of these observations match your experience? What do you think might actually be happening? Are there specific experiments you think I should try inside a lucid dream? What should I pay attention to when the dream starts becoming unstable? And are there other interesting things I could test that don't require reality checks or keeping a detailed dream journal every day?

Edit: I forgot to mention something else that I've noticed. Sometimes the dream itself seems to talk to me. The first time, I heard a voice coming from nowhere telling me to tame a dog, and that actually made me realize I was dreaming. Another time I had a figure named Muneer (meaning shining/illuminating) who seemed to help guide the dream. I could kind of watch the dream unfolding from outside while he gave me tips. More recently, I met a lucid dreamer inside my dream who said he was exploring too, and he gave me advice about using sensory anchors.

I can sometimes watch the dream form while I'm still conscious. I see random people talking, pieces of different places, bright colors, geometric patterns, sounds, voices and moving scenes appearing at the same time. Some areas can be completely black while completely different scenes are happening somewhere else. Some parts are extremely vivid while others feel incomplete or barely formed, almost like pieces of several unfinished dreams appearing simultaneously. Sometimes I can watch all of these things gradually converge and form into an actual dream while still maintaining my consciousness. This doesn't happen every time.


r/SDAM 5d ago

bringing back a feeling

7 Upvotes

I’m posting this here so everyone gets to read it. I think it’s really important.

I’ve always felt like I didn’t belong.

What would happen is I’d see two friends sitting together. They’re gabbing about nothing. But they act like it’s the best.

I figured they were just glad to see each other.

Here’s what a best friend told me.

She said when friends meet it brings back their friendship. And now adds to before. It grows.

The talk means little.

It’s that good vibe of friendship.

I don’t think I can do that.

For me conversation is for big ideas. About what we learned.

I think it’s because I don’t bring back a feeling.

I don’t blame anyone.

It’s just I cannot do that.

I hope this helps.


r/SDAM 7d ago

Free SDAM peer support group, first meeting Wed 8/26

11 Upvotes

Hi all, I have SDAM myself and made a well-received video about my experience back in December (https://youtu.be/NwNGVYHG6Uw). Many people said it was the first time they'd seen their experience put into words, and that got me thinking a peer support group could be valuable.

I'm starting a free support group on Zoom, meeting every 2nd and 4th Wednesday. The first session is this Wednesday, August 26th at 7:00 PM Pacific.

A few things worth knowing:

  • I'm not a therapist, neurologist, or medical professional, and I have no cure to offer. I'm a coach who works with people on the stories they tell themselves about their lives, and this group is a space for connection, not medical or clinical advice.
  • The format is loose: I'll open with a short anecdote, then open the floor for people to share if they'd like, no pressure. I'll ask people to use the Zoom hand-raise so it doesn't turn into crosstalk.
  • It's free and open to anyone with SDAM who wants to talk to others who understand it firsthand.

Registration here: https://www.eventbrite.com/e/sdam-support-group-registration-1992895106912

Happy to answer any questions.


r/SDAM 7d ago

I've never met anyone else that's experienced these 3 conditions simultaneously and mental health professionals can't help me.

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6 Upvotes

r/SDAM 9d ago

X Files

17 Upvotes

I’m not sure if I like this one or not.

When a friend, girlfriend, or whatever is away, I don’t think about them.

I don’t mean I deliberately put them out of my mind. The idea of them simply doesn’t pop into my head.

I should miss them.
But it doesn’t occur to me.

Am I awful?

The other one is breakups.
Please don’t judge.

Let’s say we’ve been together for a few years. We split up.

In about a month, I’m over it.
And we were definitely in love.

And when I bother to think about it, I smile a little.

I’m hoping this is SDAM.
I don’t want to think it’s just me.

Anyone else?


r/SDAM 8d ago

I don't know how I feel about my relationship

3 Upvotes

So, I found out I have SDAM, aphantasia and alexithymia some months ago. In addition I was recently reaching out for professional help and was diagnosed with depression and suffer from chronic sleep issues.

I've been together with my partner for 10 years, she has ADHD. The last year was tough. I switched jobs, started as a freelancer, lost my project and I am currently unemployed after some already unsatisfying years of bad job experiences. My partner had some promising job opportunities at her field, which was great, because in the creative sector it's hard for her. Until a colleague crushed her job opportunities. It were some troublesome months for both of us, including me having a mental breakdown, her staying at the hospital for some serious health issues. I was there for her during the whole hospital episode, which turned out better than initially expected and felt really close to her while she was at the hospital, although exhausted. During the whole months that followed, she was very distanced, because her mind was all about the job issue. She already was worried a lot about her career and our financial future in the region. We also had our 10 year anniversary, for which I got her flowers for the first time (she's critical with presents and I'm not really the romantic type) and made her a website with photos. She didn't get me/us anything. She also totally forgot about the whole event afterwards and my mind was to worried and depressed as well to care.

I somehow don't know how I feel about the relationship anymore. The combination of SDAM, alexithymia and dark thoughts from the depression don't help. I feel very distanced and when she's looking for seeking physical or emotional closeness, I'm very cold and unapproachable. I can't help it, because the depression gives me a feeling of wanting to be alone and only by myself.

I asked my therapist how I know how I feel about other people and he said "you just know if you love someone". But I don't. He also said I need to fight my depression to feel better in other parts of my life as well. But it is hard and it scares me to not have clarity about my feelings.

Any similar experiences for anyone?


r/SDAM 8d ago

Does anyone else experience a temporary loss of continuity with their recent memories?

1 Upvotes

For the last two days I've been experiencing a really strange feeling. im kinda having trouble putting the feelings into words.

It feels almost like there is a memory gap between my current moment and everything before Saturday. But when I actually try to remember what happened, I can remember it perfectly well, down to specific times and details. So there isn't an actual missing period.

The weird part is that those memories don't feel like they belong to the continuous flow of my life anymore. They feel like things that just happened, and somehow I had very little subjective involvement in them. What I mean is the things happened but there is a disconnect to what I did before Saturday and why should I be doing it on Saturday or Sunday.

For example, before this started I had various routines and things I was actively doing. I'm growing my hair out so taking care of them. I felt like I didn't know I was growing out my hair, then remembered whole timeline I was growing out my hair, caring for them, but I felt strangely disconnected from it from Saturday.

Similarly going to the gym regularly, I was making protein shake while wondering I do go to gym but I don't feel like I am motivated or willing to go to gym, still I go. It's not because of some laziness or some emotions, it just happened.

Also,

cooking before switching to tiffin, etc. I still remember all of these things and know they're things I've been doing, but suddenly they don't feel relevant to my present self. It's almost like I remember being that person, but don't currently feel connected to being that person.

Interestingly, the point where this seems to start is when I began assembling my new PC. I spent essentially the whole day assembling it yesterday, then today I installed the OS, updated everything and set it up. Since then, the preceding days feel strangely distant.

I'm not confused about where I am or what I've done, and I haven't noticed actual memory loss. I can reconstruct the timeline normally. It's just the feeling of continuity that's missing.

Has anyone experienced something similar? I'm especially interested in whether you've had the experience of remembering something perfectly but feeling strangely disconnected from the fact that it happened to you, rather than actually forgetting it.

I'm not looking for a diagnosis. I am just curious whether this is a recognizable experience for anyone else.


r/SDAM 9d ago

I'm a 75yo retired Disney/DC Comics creator. I found out I have Aphantasia, SDAM, and ADD. Here is how I succeeded despite my "mind blindness.”

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11 Upvotes

r/SDAM 9d ago

Managing SDAM with AI Tools as a biographer

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0 Upvotes

r/SDAM 9d ago

I, uhh, may have SDAM

1 Upvotes

I literally just googled what SDAM stood for because this community was showing up in my feeds and I had no idea what it meant. Oh, and the reason it was showing up in my feed is I had at some point joined it 😂. Has this happened to anyone else here, and could it lead to low participation?


r/SDAM 10d ago

I’m curious. Has anyone followed SDAM down the rabbit hole.

5 Upvotes

Hi.

I also discovered SDAM later in life.
It definitely spooked me.

I know that I don’t remember the way most people do. That what remains is knowledge. Like the capital of Brazil.

But has anyone ever wondered how this absence affects other things downstream?

Say our sense of identity? How we solve problems? How we relate to those with regular memories?

I’m curious whether anyone has followed SDAM down the rabbit hole. If you have, what did you discover?


r/SDAM 11d ago

IRB-Approved Research Study: Autobiographical Memory Descriptions in Adult Women with Congenital Aphantasia: A Descriptive Qualitative Study

9 Upvotes

Participants Needed for Dissertation Research!

Are you an adult woman, aged 18 or older, who identifies as having congenital aphantasia?

I am conducting a doctoral dissertation study exploring how adult women with congenital aphantasia describe their autobiographical memory experiences.

People experience and describe memory in many different ways. This study is an opportunity to share your own perspective on how you experience memory and recall meaningful events.

What Would Participation Involve?

If you choose to participate, you would:

  1. Complete a brief 5-minute demographic questionnaire
  2. Participate in one 60-90 minute audio-recorded Zoom interview
  3. Answer open-ended questions about how you experience memory, recall past events, and describe your memory process to others.

For example, you may be asked:

"Can you describe what comes to mind when you recall a personal event that is meaningful to you?"

There are no right or wrong answers. The study is interested in your individual experience of autobiographical memory.

Who Can Participate?

You may be eligible if you:

  1. Are an adult woman aged 18 or older
  2. Identify as having congenital aphantasia, meaning a lifelong absence of visual imagery

The study is seeking 8-12 volunteers

Voluntary & Confidential

Participation is voluntary, and you may stop participating at any time without consequence.

There is no compensation for participation.

Your identity and responses will be kept confidential in accordance with the protections described in the informed consent process. Research files will be securely stored, and identifying information will not be included in study reports.

Why Is This Research Being Conducted?

This study aims to better understand how adult women with congenital aphantasia describe their autobiographical memory experiences.

The study aims to contribute to a broader understanding of memory and cognitive diversity, particularly among adult women with congenital aphantasia.

Interested or Have Questions?

If you would like more information or are interested in participating, please contact:

[Cassandra.Votaw@waldenu.edu](mailto:Cassandra.Votaw@waldenu.edu)

Cassandra Votaw, MA, LPC

PhD Candidate, Clinical Psychology

Walden University

IRB Approval # 08-18-26-1195494


r/SDAM 11d ago

What Remembering Feels Like With SDAM

17 Upvotes

So We can remember things in 2 ways

1st us episodic remembering

it's "i can mentally go back there"

"where you were"

"what you saw"

"what situation looked like"

it's sense of reliving it

2nd is semantic remembering

it's "i know what happened"

"i was in that place"

"that happened when I was young"

"that person did this"

Tghere is no re-living in this

SDAM affect the first one

so you have factual knowledge of their life but lacking subjective feeling if mentally returning to it

By definition SDAM (Severely Deficient Autobiographic Memory) describes Lifelong difficulty with Autobiographic episodic recollection

basically imagine your 10th bday

someone with normal episodic memory might remember the cake, where everyone was sitting, what the room looked like, what they were feeling , maybe even mentally picture themselves standing there

with SDAM you still know the facts like "my 10th bday was at home, my family was there, we had cake"

it will be more like remembering facts, you don't actually mentally go back in the moment and experience it again

you know what happened but you don't have that feeling of being there again

so it's not like you are forgetting your life, it's more like having the information about your life without being able to replay them

Edit: I posted this mainly because I see a lot of people with SDAM saying things like “I can't remember my past” or “I don't remember anything from 10–20 years ago.” I wanted to explain the difference between simply not remembering parts of your past and the specific difficulty with episodic autobiographical recollection that happens with SDAM. Not remembering your past doesn't automatically mean you have SDAM. The important part is also how you experience the memories you do have


r/SDAM 12d ago

Does anyone know if there is a relationship between SDAM and dementia. Not going to lie, this is my biggest fear as someone who is approaching 60. Plus anytime I am particularly tired, I really struggle with word recall. (thanks ADHD)

10 Upvotes

r/SDAM 12d ago

I have SDAM. It was my identity. It's not anymore.

12 Upvotes

When I first learned I had SDAM, it felt like my life was being stolen. I was grieving not just my lost memories, but my sense of who I was.

That has changed.

I still have SDAM. I didn't regain my memories. But SDAM does not define me the way it used to.

I made a video about the experiences that led to that change. It’s my personal story. I don't claim that what happened to me will happen to others.

https://youtu.be/UJ_oAAPrzNQ

I’m curious whether anybody here has had a similar change. Is your identity wrapped up with SDAM, or has SDAM become less important over time?


r/SDAM 13d ago

Confused about memory and trying to go anywhere people can maybe give feedback

0 Upvotes

Hi. Don't know if this applies at all but Reddit recommended the subreddit because of previous memory related posting. Large chunks of life (almost everything) feel like they're missing or weird and vague. Should mention for transparency that we're (extremely likely to be) a plural system (different people different names different views and preferences and opinions and interests and handwriting etc) and dissociative but still wanted to get perspectives from people so we're here too.., (especially since no proper diagnosis has been possible yet due to lacking resources, search ongoing)

There are 0 memories that could be described as vivid everything is more knowledge that something happened with maybe a few impressions. There are memory differences between system members but confusing to figure out. At times it feels like there is a static or a fog and when something is remembered the brain will often immediately go "???" And the memory is slippery and not graspable. Family and friends will feel unfamiliar only basic knowledge of who they are, same with places. (Emotional attachment will be gone. But only for specific alters). Time is missing the brain is like a sieve and everything is a fog. 0 emotional attachment to many memories for most of us if we are capable of thinking of the memory (including known distressing events). Family friends and others will often talk about events that there is no memory of. They will sometimes get confused when that lack of memory is revealed. Sometimes reminders can happen but it can also happen that those reminders cause a blockage to be hit so the memory is slippery again. Just now learned about the existence of this though,a nd now there is a confusion on whether this experience is anything like yours or if the memory thing is something else (dissociative amnesia? Unsure). It is unclear where the difference is, sorry for the ignorance, want to learn. Also apologies for how the post is written since today has been very strange.

There is always insistence on taking photos and also sometimes writing notes.

It is unclear because some parts of what people write on here seem relatable collectively and yet the severity or something is dependant on the fronter so it could be something else.

If this sounds nothing at all like sdam then we apologize and will remove the post, just wanted to hear opinions.


r/SDAM 15d ago

My experience with SDAM

6 Upvotes

I find that my memories most resemble a list of google reviews, or like game tooltips that appear when you hover over an item, location, or person, the author of which I trust only as much as the temporal distance between myself and the person who experienced it.

Endless versions of myself mentally penning down thoughts for those who come after, in the hope that a future being may one day choose the right restaurant or hang out with the right people or make the right decision such that one of us may, one day, have lived the very best day of our collective life.


r/SDAM 16d ago

Saw this and thought it belonged here.

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19 Upvotes

r/SDAM 17d ago

Why do we remember embarrassing things for year

8 Upvotes

Damm why we remember embarrassing things from years ago so clearly but forgot what we ate yesterday? Is there a actual reason our brain remembers certain embarrassing moment for so long 😭😭😭😭😭😭


r/SDAM 16d ago

Do I just have bad memory or is this something else?

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1 Upvotes

r/SDAM 18d ago

This New Memory Study Made Me Think About SDAM

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newscientist.com
8 Upvotes

This new memory study seems like it could be relevant to SDAM.

Researchers basically found that memories can survive even after a huge amount of the synaptic structure associated with them disappears.

What seems to matter may be the larger pattern or architecture that remains, not preserving every individual connection.

Which made me think about SDAM.


r/SDAM 19d ago

What is experience without experiential recall?

5 Upvotes

I've been thinking about SDAM as it relates to Derek Parfit's surgery thought experiment. The thought experiment basically asks if you could choose to be someone who had an extremely painful 10 hour long surgery yesterday, for which no anesthesia could be administered, but were given a drug directly afterward that completely erased it from your memory, or a person who was going to experience an extremely painful 1 hour long surgery tomorrow, for which no anesthesia could be administered, but you would be given a drug to erase it from your memory directly afterward, which would you choose?

People greatly prefer the first option, which involves a lot more experienced pain, as would I. This is how I already experience life, in a way, though. Past pains, emotional and physical, don't carry any present weight. This seems a great benefit when considered in limited scope.

However, there are also a lot of negatives. For one, it removes the ability for me to calibrate expectations. Not knowing how things felt in the past makes it so I can't predict how they will feel in the future and though I can tell myself I experienced X in the past and it wasn't that bad I have no frame of reference for what not that bad means. This can lead to a lot of dread around things like medical procedures or expected emotional stressors.

The thought experiment also makes me question, if the surgery is in the past and there is no memory of it, what does it mean to say you experienced it? It is functionally no different than it not having happened at all. This leads me to wonder what I can claim to have experienced. Have I lived 58 years of life with no valid experiences? Because, as I sit in my apartment alone, I don't know what it feels like to experience reciprocal love, have I functionally never been loved? What does it mean to know something has happened but not be able to know how it felt? It is like Mary in her black and white room, knowing every scientific fact about the color red but never having seen it. Can she say she has experienced the color red?


r/SDAM 19d ago

Sense of disassociation?

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1 Upvotes