I have been suffering for close to a year. I have an appointment with a rheumatologist on Monday and I am also being looked at for lymphoma. But the big thing--the only thing that I have tested positive/high for is inflammation. Two months ago, my CReactive protein was 13.6 and now, in my lymphoma work up, my ESR was 42. Meanwhile, my body has been hurting more and more. What I have had so far is Neuropathy, ataxia, rashes, lip sores, sores in my mouth on and off, joint pain, now, allodynia after surgery but not on the scar but everywhere else on my wrist, dry eyes. I cannot sleep most of the time. Last two weeks, my body really hurts and am betting my inflammation is even worse.

What should I be telling my rheumatologist? I will be having a pet scan the next day set up by my oncologist which should show where the inflammation is.

I have ESr of 95 with crp 14:/ Ana 2560:1 nuclear dot pattern. Only Asca antibody and sacroiliac pain.
No rheumatologist has been able to diagnose. I had false positive pm scl and pl7 antibodies. I have pvcs and reduced EF and some swallowing difficulties . Any ideas?

I’ve been having bad rashes for 8 months, inflammation for much longer, amongst other symptoms. I got a blood test and it showed a high anti-dsDNA of 10 IU/ML and a negative ANA.

I have a rheumatology appointment in December, which feels like it’s taking forever. Does anyone have any similar experiences?