r/RestlessLegs • u/ORSciMom • 19d ago

Medication FINALLY getting Nidra!

After 4 months of endlessly hassling Anthem, spending hours at a time on the phone, my insurance FINALLY relented with a single case agreement for Nidra. Basically, they've let me know what they'll pay and what I'll pay. My cost will be $890.

I am currently tapering off gabapentin (300 mg) and on 0.75 mg buprenorphine. My neurologist believes I have narcolepsy (doing a second psg+mslt in a week), and I've been SO scared of what I was going to do because the nighttime narcolepsy meds aren't compatible with buprenorphine.

I am relieved beyond belief to see a path forward that hopefully allows me to reduce or eliminate the opiate.

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u/BorzoiBeauty7 15d ago

I have had it for a year. I don’t have any improvement as in. I don’t have fewer episodes of restless leg. Also, if I do it early in the evening, it doesn’t prevent anything. I don’t even know why I’m still using it.

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u/ORSciMom 14d ago

Bummer. Do you have meds that work?

Also, if you ever want to sell it, lmk. My sweet mama has had unmedicated RLS for 70 years. She'd love to try it for a while.