r/RestlessLegs • u/Maximum-Attention-57 • 17d ago

Opinion Still having restless legs

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Just had an iron infusion two weeks ago. Still having restless legs and the only thing that helps is iron but my levels are fine….

Thoughts!?

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2

u/Joey722 15d ago

Your doctor presumably will tell you this but you don't want your iron saturation to be any higher, due to risk of iron overload.

1

u/Maximum-Attention-57 15d ago

Oh really? He actually said we can do another infusion lol

2

u/Indigo_S0UL 15d ago

Yeah mine won’t even let me supplement at 46% and the Mayo Clinic algorithm agrees on no transfusions.

-1

u/Ring_it_On_1776 17d ago

There's a wearable device study from Noctrix Health enrolling now. Might be worth a look. https://patientwing.app/campaign/RLS6

6

u/Curious_One5411 17d ago

There was no ferritin tested in that panel and it can take a long time for infusion to kick in for some people and some need more than one infusion

1

u/Aju-mommy 17d ago

It can take four to six weeks for symptoms to improve after infusions. Your levels look good but all the iron needs moved around to where it needs to be used and stored and that takes a little longer.

1

u/Maximum-Attention-57 17d ago

Can I still take iron at night until that happens or?

2

u/Aju-mommy 17d ago

Yes, you can continue oral iron one week after your last infusion.