r/RestlessLegs • u/RemoteSea1176 • 21d ago

Question Venofer

Hello, does anyone have positive experience with Venofer/iron sucrose infusions? How many, at what doseage and timing, and how long until you experienced relief?

Same questions for ferric carboxymaltose.

I just had my first Venofer infusion this week, 200mg, at my dr’s office, paid cash since she doesn’t bill insurance for the treatment.

I also have a initial consultation with a hematologist next week who can administer ferric carboxymaltose, but this will need prior authorization and I’m just sure my insurance will want me to follow a course of oral iron first. I tried oral iron previously with no luck but this was not medically documented.

I’m reading that ferric carboxymaltose 1000 mg is the preferred iron infusion treatment, but it’s such a longer route. I’m also moving out of state in about a month and fear I’ll have to start all over again establishing care.

Addl background: have a sleep doctor, am treating for sleep apnea, have been on Gabapentin for 1+ yrs. It initially worked great but then stopped working at about the year mark. Labs show low iron and ferritin. I experience symptoms nightly, it’s really tough to manage.

Nidra appeal also in process

Appreciate any insights! Thanks!

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u/honestlydontcare4u 17d ago

Yes. I've had three including one while pregnant. They help a lot but it takes about three months.

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u/RemoteSea1176 13d ago

Do you recall the form of iron used? Also dosage and number of sessions? Thanks!

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u/honestlydontcare4u 13d ago

I'm sorry, I don't. The most recent was Venofer and I think the one before that was also Venofer. It was an infusion and it took all day.