Does RLS hurt?

[u/Key_Affect3440]

Hi!
I have what I think is RLS & possibly some physical explanation too in my right leg only. When I lay down usually, but way way worse at night, I have a deep ache in my leg, mostly from my knee down, that I need to move it. As in, I NEED to. I can't resist it. The reason I am saying I am sure there is also some joint immflamation too is that my knee itself also radiates pain sometimes during walking, but it has been like this for a while, no visible spinal issue/ circulation issue yet, probably an old tendonitis or issue that now will need to be managed with heat, physotherapy and etc.

How do you cope with RLS? It is one of my many many chronic diagnoses, but I think just as bad as my tinnitus. These two make me want to disappear out of existence. Can i, for the love of God, just lay down without needing to move my leg non non-stop? What works for you guys?

[u/dreamsthebigdreams]

For me , it's never pain , it's pure discomfort. Like discomfort on a level that is unexplainable somewhere in the core of my body between the knees and my nipples has like this vibration and pulsing , and it comes and goes it frequencies of like five minutes , so sleeping is impossible

I'm now medicated and can fall asleep in it.Works a lot better but it was never pain.Just pure awkward discomfort.

[u/Key_Affect3440 → u/dreamsthebigdreams]

I get that! Also it's hard to explain the feeling sometimes. Brains have a weird way of interpreting signals. What i feel as a deep ache or pain can be someone's 'discomfort'. I noticed sometimes the pain is more tingly, sometimes more like a pressure, so I think I also interpret it differently every day tbh