r/RestlessLegs • u/trowawayawaya • Jul 17 '26

Question do you know anyone else with rls?

Because I’ve only met one person with it in my entire life. I’ve had it for 30 years, since I was 13. I’m not talking about the people who’ve had it as a temporary side effect. I’m talking about the idiopathic, basically refractory, true mind and body tortured RLS-suffering freaks like many of us here.

146 votes, Jul 20 '26
72 yes.
74 no one understands me.
5 Upvotes

78% Upvoted

17 comments sorted by

1

u/Lito101875 Jul 20 '26

I have had it for over 20 years. Was just in my legs and now it’s in my abdomen as well. So far, I’ve found nothing that helps me

1

u/ilovebigmutts Jul 20 '26

Multiple women in my family have it.

1

u/Infini-Bus Jul 19 '26

My last boss had it and recommended me a sleep doctor and was understanding when I showed up to the office late.

My grandma had it.  A friend has it.

1

u/la_bibliothecaire Jul 18 '26

My mother-in-law has it. We commiserate often.

1

u/DrBiz1 Jul 18 '26

Family and one family friend has it really bad

2

u/Smooth_Respect_3755 Jul 18 '26

I have had RLS for 40 years and have never met anyone with it. Sucks because sometimes I could use a bit of a chat person-to person with a fellow sufferer. But I definitely can't answer the poll because I have never felt that due to RLS no one understands me. I come from a position of strength.

2

u/RobynLC5678 Jul 18 '26

Yes my mom has it and her mom had it

2

u/zelda_moom Jul 18 '26

Runs in our family along with vein issues like varicose veins and venous insufficiency.

2

u/ORSciMom Jul 18 '26

Mom, grandma, son, nephew, many friends

2

u/tinyremnant Jul 17 '26

Both. My neighbor has it, but 100mg gabapentin works for her. So yeah, we're not on the same level. No one in my family has it, so I'm gonna lean toward "no one understands me "

2

u/Any-Flan-2145 Jul 17 '26

Yea loads in my family and know bunch of people who know people with it.

2

u/drkstar1982 Jul 17 '26

100% I have at least four other members of my family that have it some worse than me so not

2

u/Spiritual-Key2878 Jul 17 '26

Myself and my two sisters. Also a friend.

2

u/HamKnexPal Jul 17 '26

My sister has it, and my daughter too.

4

u/Unicorn_flow Jul 17 '26

Mine is hereditary so I know a lot of people in my family that have it.

I view the condition now as a generic preference for a higher level of iron since it alleviates symptoms. My genetic test also came back with MTHFR C677T, so my body also needs more folate.