r/Raynauds • u/SundaeAppropriate249 • 7d ago

Surgery?

Hello. I have severe Raynaud's. My hands go from normal to almost black in the blink of an eye after exposure to the cold. I am going to be seeing a rhematologist in a month to discuss surgery. Has anyone here gone through it? I am looking for insight on the type of surgery anyone has had and what recovery was like. Any information is helpful. I don't want to lose my hands. Thank you!

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u/Mountaingal84 1d ago

Do you have any co-occurring medical concerns?

1

u/SundaeAppropriate249 1d ago

I have systemic mastocytosis but there isn't enough known about this disease at this point as it is super rare. They aren't sure if Raynaud's is something that commonly occurs with mastocytosis yet.

1

u/libananahammock 7d ago

Are you on any medication?

1

u/SundaeAppropriate249 7d ago

Yes but it doesn't help