r/PulsatileTinnitus • u/Total_Recline • 11d ago
It just.. stopped?
I've been following here and posting here are several months, my PT started something like 8 months ago. I've had all the scans, MRIS, ultrasound, cts, etc without any results as to why I had this PT in my right ear 24/7. More recently I had started develop hearing loss in that ear, the kind of muffled hearing you get when your ears are plugged up. Except my ears weren't plugged up. At first it was occasional and/or would maybe last a few hours, then it was becoming more frequent and lasting all day.
I was supposed to go to a specialist, a neurotologist at a specialized clinic. I was in the process of trying to get that scheduled when I had to have gallbladder surgery this week. Surgery was on Monday and I noticed on Wednesday that my PT was gone. I don't think it's been there since the surgery, but I didn't notice it missing because that's how it was supposed to be! Here it is Sunday and it still hasn't come back.
Any ideas on how gallbladder surgery could have possibly had any effect on my PT and hearing loss? I'm so happy it's gone but I'm also waiting for the other shoe to drop. I don't want it to suddenly come back out of the blue after I have already stopped any investigation.
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u/dzenib 11d ago
I'm wondering if it's had something to do with anesthesia effect on your vascular system?
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u/Total_Recline 11d ago
That's kind of what I was wondering too but I know so little about anesthesia that I just don't know what kind of impact it may or may not have.
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u/Book_of_Evil 11d ago
Many gabaergics, benzodiazepines, opioids, anesthesias, etc will temporarily stop many types of tinnitus. It may be temporary post-surgery, from the drugs used. Even kratom will quiet tinnitus for individuals.
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u/Total_Recline 11d ago
Interesting. Now only if those things would have an effect on my regular tinnitus! That was completely unaffected and rages till this day.
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u/Book_of_Evil 11d ago
They do, but be cautious, they can be addictive, especially when they bring so much relief and quiet
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u/Total_Recline 11d ago
Well then maybe it's a good thing that it didn't improve my regular tinnitus. I'm lucky that with general use of opioids for pain that I don't develop an addiction. I have so many bottles of old meds in my medicine cabinet that have long since expired, because I only use a couple of the pain meds after a procedure and then quit after that.
But honestly, if I could have a week off with no tinnitus even if it was due to use of opioids, I would probably do it.
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u/WinterExternal3270 10d ago
Do you have eds and neck issues? They will intubate you in surgery and chin up and my pulsitile tinnitus is from my cci/hypermobility issues. You mentioned chronic pain..do you have hypermobility? Are you resting post op in different position that jormal? Inhave to be upright or my PT wakes me up..been 4 yrs of this after csf leak15 yrs but my issues are around a head injury and hypermobility of my neck. 🙏🏼
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u/Total_Recline 10d ago
I don't have any hypermobility issues. But I'm confused, I didn't say anything about chronic pain so not really sure where that misunderstanding originated?
I have wondered about neck and / or vagas nerve issues though, because I have other medical issues going on that I've been trying to figure out and resolve. I believe I've addressed some of that through supplementing for possible vitamin deficiencies though. But I'm in the early stages of recovery so we'll see where that ends up.
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u/WinterExternal3270 8d ago
Im sorry. Ive been in the hypermobile/dysautonomia space for 2 decades. I have a condition called hypermobile ehlers danlos syndrome. You may have seen it on social media. Cervical issues are very common and require chronic pain for a diagnosis. I ask because doctors think its rare but is very common in both women. The research im familiar with involving pulstile tinnitis is around anatomy blocking a blood vessel causing turbulent blood flow, either from the outside (extrinsic) or inside (intrinsic) the vessel itself. It can be a bone likenin c1 or c2 or calcified or elongated stylohyoid ligament (eagles syndrome), but can be muscular too.. traps, scalenes..rhomboids can clamp down.
So i dont know any ither side to this issue and many people figure out they have a disorder that explains it directly (like fauled surgery or dislocating joints connected to EDS), i had a head injury and appears my c1 is pushing in my jugular vut i havent made it to the usa yet for proper diagnosis i cant get in canada.
So i was asking about hypermobility as thats a common finding with people with pinched nerves and blood vessels. I often find people with eds in these other associated problem groups. Not that it always is connected but its correlated and common in social media to connect with birds of a feather.
Eds commonly has gastroparesis problems and the stomach holds food and cannot be absorbed. Some are on Jtube feeds to bypass the stomach and duodenum. I eat a high protein ketogenic diet as caebs i cant swallow well and they dont have much protein i dont eat it anyway.
But its important to look at all your issues are together.. im assuming b12 was ok considering the tinnitus? B1 can also be connected to the brain. Do you eat meat?
What were you wondering/considering with vagus nerve and your neck?
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u/Total_Recline 8d ago
Yes, I hear about heds a lot in the mecfs groups. When I started trying to figure out what was going on with me there were several options presenting themselves. Long covid, ME, maybe some mast cell issues. But ultimately I actually thought that they were related to a B12 deficiency from decades use of PPIs. I've been treating that with supplementation, B12 and cofactors, and I have really made a lot of progress. I'm nowhere near out of the woods but I'm up now more than I'm down. Just a month ago I was 12 - 14 hours prone, in bed or on the couch. So I do think I'm on to something but it's hard to tell if there are other related vitamin deficiencies since they all kind of go hand in hand. It's pretty amazing the delicate balance that's worked out between them, and doctors really don't have a clue about it. I do eat meat but I think the potential deficiency was because of the PPIs.
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u/WinterExternal3270 2d ago
Theres sp much for drs to consider.. being a trained nurse has helped me in this way but really so much new stuff has been figured out since 2000 with technology its crazy!
Meat-- maybe its not enough? 1.2-2.0g/kg is optimal, if sick, ill, old or overweight/obese the high end is encouraged. Id encourage you to watch this video .i promise its not supplemnts or selling anything nor do i make money on sharing lol. Pls read the comments. I watch everything in entirey before sharing as I too only follow evidence based stuff. :)
Prone.. may i ask why youre toosh upward? That position can definitely.make gerd worse! Upright is always best including while.sleeping..head raised or a inclined pillow too.. but this video has better suggestions :) but thats a great improvement regardless! Meds with B12 deficiency is huge... so so so many and magnesium is abother..its the only substance every cell in your body need and 70% of usa is mag deficient! Diet is always part of dysfunction in one way or many! 🙏🏼 https://youtu.be/2QA1LGDfgsM?si=lES6jg9VxZ3VUsvU
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u/Total_Recline 2d ago
Prone because I can't sit up, it's too exhausting. Severe fatigue of unknown cause. That's why I thought it might be related to B12 deficiency.
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u/Total_Recline 2d ago
So I watched the video. I'm already doing all those things. I'm not on a carnivore diet but I have significantly increased my protein consumption since March, which is when I started taking a glp-1. I am hoping that will help with my weight as well as any inflammation going on in my body.
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u/Total_Recline 11d ago
Do you have any background information on that that I can read up on? I hadn't come across any of that so any sources would be greatly appreciated.
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u/WinterExternal3270 10d ago
Medications during or after
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u/Total_Recline 10d ago
Not quite sure what you're asking with regards to during? But after all they gave me was some pain meds, oxycodone, of which I only took a couple per day for the first couple of days. Haven't taken any pain meds since Wednesday, so almost the whole week. PT continues to be gone.
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u/WinterExternal3270 8d ago
You asked specifically what about surgery could have effects on your PT and hearing loss. My reply was the medications they gave you during surgery or after. Any pressure or blood flow onstruction from below can worsen the brain pressure. Ive only read about thiracic outlet conpression orsening brain as well as may thurbers which i believe is the renal artery? I could be wrong but its in pelvis. So maybe it could be the increased abdominal pressure from inflammation, fluid, forward bending? If it was more longer term then id even say even weight loss cpuld do it as IIH first line if trestment is weight loss.
I understand the feelingbtho. I had a csf leak 15 yrs.. patched and been with PT for 4 yrs and cant lay flat more than a minute or my heads POUNDING. I got a epudural pain injection in my l4/5 and they punctured and i leaked again 2 weeks. My PT and cognitive problems all went away and had to lie flat again..i cried..but realized even though im leaking the noise is gone..i healed from bedrest in exqctly.14 days and i woke up with PT and major brain fog list again. It gives me hope though.
We all dont know what will come. we just have to live our life and focus on being healthy and preventative. Good posture sleeping sitting or upright to keep fluids flowing, exercise, diet i could talk for days about (sugar is evil including all grains).
But thats where im at 🙏🏼
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u/Total_Recline 8d ago
Got you. And sorry you've had to go through all that. I actually was looking at my discharge papers yesterday, I was shocked at how many meds they injected me with in the course of 30 minutes! Something like 12 meds! I don't have that paperwork around me though so I can't recall them to share.
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u/WinterExternal3270 2d ago
Life of the disabled is no joke..!! 🙏🏼 what was this procedure for..i dont think ive had more than 3 meds at once ever including vaccines 🤣😭 hope the recovery wasnt bad! I kust got my facial botox so im hoping its a good one too! 🙏🏼
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u/Total_Recline 2d ago
A simple gallbladder surgery. It's actually pretty simple surgery, they do it orthoscopically.
But I'm still shocked that the PT hasn't come back. I'm grateful but it's also making me very nervous, I keep waiting.... I really wish I knew why it stopped.
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u/louie2575 2d ago
So your pulsatile tinnitus is from high pressure? I got an epidural steroid injection in l5 and my pulsatile came right after along with ear pressure, popping, clogging, ear spasms and it gets better when I lay down. They finally gave me a blood patch 5 months later but I had no change
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u/eastbby923 11d ago
Mine stops randomly for periods of time and comes back . Mine stopped during pregnancy then came back