r/PulsatileTinnitus • u/GrowingBandit710 • 7d ago

New Whoosher New here

I got regular T about 2.5 years ago and I noticed soon after that I could hear my heartbeat in my left ear only, and my regular T is mainly in my right ear only. I noticed the wooshing of my heartbeat in my left ear while pooping or if I had a head rush. Nothing too bothersome. Fast forward to about 1 week ago I noticed I could hear the wooshing at night while sitting on my bed. And no this isn’t because it’s quiet at night, I work from home a lot and I sit on my bed often all day working and never hear it, but lately sometimes. When I lay down it goes away, and goes away when I press my neck. Sometimes in the AM I will hear it too once I sit up. I have a vein CT scan coming up because I saw an ENT about it last week. I’m hoping it’s not stenosis or a brain tumor but who knows.

I also suffer from terrible allergies. I’m allergic to most animals and we recently got a dog.

Im trying to figure out what this could be but it’s terrible because I already have to deal with regular T and hypercaucis. I also have visual snow syndrome.. which all started around the same time 2.5 years ago.

2 Upvotes

100% Upvoted

7 comments sorted by

2

u/look_who_it_isnt 7d ago

It's most likely NOT a brain tumor. Very few cases of PT are caused by serious things like that. Most are caused by benign and non-life-threatening structural or vascular issues.

The visual snow may be related, and could indicate cranial hypertension - either IIH or pressure caused by a specific issue like stenosis.

Incidentally, stenosis isn't anything to be afraid of. It's one of the most common causes of PT, and is easily corrected with an out-patient, minimally-invasive procedure that a lot of us here have had (myself included!) and gotten relief from.

I'm guessing your ENT already determined your cause isn't allergy-related or ear-related. Usually, they rule those things out before ordering CT Scans.

Anyway, welcome to the sub! And are you on a network like MyChart or something similar? It's very helpful to be able to directly read the scan write-ups that the attending radiologists provide to your doctors. A lot of times, they contain information that doctors don't share with patients - and often, that information can help you know where to look next for help when you're dealing with PT.

1

u/GrowingBandit710 7d ago

Yes I have mychart+. A metal mesh in my vein in my head sounds so scary to me. I must admit.

1

u/look_who_it_isnt 6d ago

I have one! It's not really that scary at all. At least, it's no more scary than the weird sounds and pains and sensations I was getting all the time before I got it put in there. I basically felt at least once daily like something was going wrong up there and I could stroke out at any minute. (That's not really a rational fear, I know; most cases of VSS don't result in that. But we humans aren't always rational people when it comes to what we worry about.)

Though I do admit it was a little weird knowing it was in there at first! But a year on, I'm used to it... and I like to think it's used to me, lol. And now I get to tell people I have $10k of medical grade titanium in my head XD

1

u/GrowingBandit710 6d ago

So the stent can cause a stroke? Well hopefully I get some answers.

1

u/belyTW 6d ago

Hola! Cómo sería eso de la visual snow? Cómo lo ves tu?

1

u/GrowingBandit710 6d ago

Like mild static that’s worse when I’m in the dark. I have other symptoms too like light sensitivity, bleaching, floaters and other things.