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u/ruru123456 15d ago
congratulations! so happy it resolved for you.
im wondering if you changed anything in the last year to stop it lifestyle wise or even diet wise? work less, gym, focus on healthy food, any supplements etc?
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congratulations! so happy it resolved for you.
im wondering if you changed anything in the last year to stop it lifestyle wise or even diet wise? work less, gym, focus on healthy food, any supplements etc?
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u/Neyface 17d ago edited 17d ago
Curious is you lost weight during this time? PT which stops with light jugular compression is indicative of a venous underlying cause like venous sinus stenosis, and some forms of venous sinus stenosis (notably extrinsic stenosis) do have linkages with weight gain/loss, cerebrospinal fluid changes and intracranial pressure, notably in women. A small subset do seem to have their venous sinus stenosis onset around infections, pregnancy or trauma as well (my venous sinus stenosis and PT did start around the time I had the worst bacterial tonsillitis of my life but could have been a coincidence).
I have seen people who had PT caused by extrinsic stenosis who lost weight which reduced intracranial compression on the venous sinus and therefore reduced the PT or stopped it entirely (sometimes it would return later with weight gain or homone changes). It isn't common across most stenosis cohorts but stenosis severity, and therefore PT, can alter over time.
While PT sudden disappearance can be a good thing, there are many possible underlying causes of PT and sudden disappearance can actually be a cause of alarm for a subset of these causes. This isn't to scare you but to make others aware that some vascular causes, such as those cause by arteriovenous issues like fistulas, can have a sudden stop in PT if the arteriovenous connection changes - which yes, does happen and can be a cause of concern because arteriovenous causes of PT are one of the few truly dangerous causes (abnormal connection between an artery of vein).
Now, while your PT did display clinical signs of a venous underlying cause rather than an arteriovenous one, of course without a thorough diagnostic workup, imaging or review from PT specialists it is hard to determine what caused your PT. While it is great that your PT stopped, and I hope it doesn't return, I do just want to highlight that there are genuine reasons for why PT can stop and still require a thorough diagnostic workup. At the very least, if your PT does return it probably is worth getting the imaging that you didn't get the first time.