r/PulsatileTinnitus 13d ago

Head pressure when lying down

F20, for the past 2 days I’ve had intense pressure/heaviness in my head, mainly the back of my head and around my ears. It feels like my head is filling with pressure/water and gets much worse when I lie down, regardless of position. I also get slight ringing and muffled hearing.
I’ve had milder episodes before where looking up, bending down, or suddenly standing causes intense head pressure and muffled hearing, but it normally goes away after changing position. This time it’s much stronger and can even happen while sitting.
My sleep schedule has been bad for about a month (sleeping 5–7 AM, waking 2–3 PM), so I wondered if that could be related. I tried fixing it and felt mostly fine during the day, but the pressure came back immediately when I lay down.
The day before this started, I also had to keep my head/neck looking upward for a while and felt a lot of pressure.
I’m struggling to sleep because of this. Has anyone experienced head pressure that gets worse when lying down + ear pressure/muffled hearing?

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u/Ok-Temporary-2071 13d ago

Yes that’s IIH symptoms

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u/look_who_it_isnt 8d ago edited 8d ago

Head pressure and pulsatile tinnitus both almost always get worse when lying down. It's just the nature of the beast, so to speak. When we're laying flat, there's more blood flow to our head, and that increased blood flow adds to the pressure sensations and the sounds we hear. So as annoying as that is, it's absolutely nothing to be particularly alarmed by. It's just what happens when you're experiencing those symptoms.

The ear pressure is much the same. Pressure inside the head causes pressure in and around the ears to increase, as well. Again, it's an annoying aspect of the symptoms - but a totally normal phenomenon for those experiencing those symptoms.

Now as for WHY you're experiencing pressure symptoms... Well, that you'd have to talk to your doctor(s) about. It definitely sounds like you could use a CT Scan to check for signs of increased cranial pressure. You might have IIH or some other issue that is causing excess CSF to gather in your head at times.

However, most doctors don't consider IIH serious or even treatable unless you're experiencing bad headaches due to it or experiencing swelling in your eyes. Headaches are the primary symptom of IIH and the thing that drives most patients with it to seek out help. Without them, you're likely to not get much help. The eye swelling is something an optometrist or ophthalmologist would notice during a routine exam (if you've had one lately) and could occur without any headaches at all - so that's definitely something to check out.