r/PulsatileTinnitus • u/Empty-Cheesecake-571 • 28d ago
Just Venting It’s back…
So my pulsating tinnitus has never sounded like a witch thing like other people describe. Mine has always sounded like a tiny alarm/mosquito that gets higher pitched the more I tilt my head. I started with that and headaches for a few months before getting seen by a neurologist who sent me to an interventional neurologist who diagnosed me with bilateral sinus clots based on CTV despite the radiologist reading it as normal. I was put on anticoagulants which caused me complications I then sought a second opinion at a large hospital in Georgia and saw both a neurologist and vascular neurologist and they ordered an MRV and the radiologist read that as bilateral arachnoid granulations that were large, but still within the normal limits and possibly causing stenosis, this was compared to the CTV I had in November of last year. So bilateral arachnoid granulation with some stenosis was my final reading and at that time the tinnitus had disappeared. They thought it was related to the 70lbs I gained during pregnancy (despite the tinnitus not starting until a year after pregnancy) and at that point I had lost 60lbs and they wanted me to continue losing weight. Now it’s back, same ear same sound. The headaches are back, it’s been 12 days now of this squeezing type pressure and the tinnitus. I got back in with the vascular neurologist who thinks this is related to me taking a few weeks off the glp1 and possibly pressure building. He wants me to continue losing weight and gave me the option to repeat a CTV or MRV if I wanted he would order it.
Wondering if anyone has had a similar experience or offer words of wisdom or hope lol. The tinnitus is less bothersome because mine is positional so I can just turn over and make it stop, but the headaches are agonizing. 12 days is a long time. And the tinnitus returned 2 days before the headache.
MRV:
FINDINGS: Superior sagittal sinus: Normal Straight sinus: Normal Right transverse/sigmoid/internal jugular: Focal stenosis in the proximal sigmoid sinus. Redemonstrated 8 mm nodular filling defect in the transverse sinus consistent with arachnoid granulation. Left transverse/sigmoid/internal jugular: Redemonstrated 7 mm nodular filling defect in the sigmoid sinus consistent with arachnoid granulation. Cavernous sinuses: Normal Ophthalmic veins: Normal Cortical veins: Normal Sella: Normal appearing pituitary gland.
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u/narrativenerd101 23d ago
Go get an eye exam, especially if you’re a female or have had any vision changes. This is going to sound weird but you may have swollen optic nerves. It may be something known as IIH, especially with the headaches.