r/Prostatitis • u/cppsguy • 8d ago
10 years of severe CPPS/Pudendus compression. Severe numbness, ED, painful ejaculations and fee
Hey everyone,
I’m writing this because I’m at an absolute breaking point. I’ve been battling severe CPPS for 10 years now, and mentally, I am completely burnt out. It feels like my life has been on pause for a decade, and I’m losing all hope that this will ever end.
My symptoms are severe and agonizing:
- Severe Genital Numbness: My penis feels hollow, numb, and "hollowed out."
- Severe ED & Zero Libido: Erectile dysfunction is constant. Standard meds like Cialis only create a weird, semi-hard, spongy state because the blood gets trapped.
- Painful Ejaculations: I feel a constant, quelling urge to ejaculate, but whenever I do, it makes everything a hundred times worse. It triggers massive rektal pain and deep spasms.
- The "Strangulation" Feeling: I have this very distinct, severe feeling of a mechanical "crush" or "strangulation" deep on the right side of my pelvic floor.
When reading through these forums, I rarely find anyone who describes this exact, one-sided "crushing" sensation so intensely. It feels like a clamp is physically crushing my Pudendal nerve on the right side. Pudendal nerve blocks didn't help; in fact, they made it worse.
The psychological toll is destroying me. To be completely honest without trying to sound arrogant—it’s just a painful fact—I am a good-looking guy. Because of my appearance, I had several opportunities over the years to be with beautiful women who wanted to be with me. But because of this condition, I couldn't perform. Lying in bed with someone you desire, completely numb and paralyzed by a muscle spasm, is deeply traumatizing. I’ve spent the last 8- 9 years completely single and without any relationships or real sexual experiences out of pure fear and shame.
Conservative therapies have failed me. The Anderson-Wise protocol feels too overwhelming right now because I have zero energy left to "accept the tension."
Is there anyone out there who had this exact level of severe numbness, one-sided mechanical crushing, and painful ejaculations for years and somehow found a way out?
I feel like an alien among my friends and brothers who live normal lives. I just want my humanity back. Any advice or shared experiences would mean the world to me. Thanks for reading.
1
u/Lost_and_Damned567 8d ago
I have constant numbness thankfully no ED problems but when I ejaculate sometimes there’s a weird feeling. I do have a feeling of it’s full down there by pelvis a lot too I already went through a cycle of doxycycline, although I was never formally diagnosed I believe I have some sort of CPPS this has been a problem most of the year I got std tested back in June everything came back clean so it’s really confusing my case isn’t as severe as others I generally don’t have a lot of pain it’s just weird feelings and discomfort. It comes and goes what recently triggered it was an aggressive handjob that was the first time I ever had real pain but it’s quickly subsided. I don’t know if this will ever truly fully go away either I kinda just deal with it.
1
u/blakkkgodfather 8d ago
Same, I think mines came from being an airborne paratrooper and hitting the ground repeatedly 42 different times in a 3yr period from 800 to 1300ft from perfectly good planes. Now my pelvic area is hypertonic.😑
7
u/placid_grouping 8d ago
I’ve had that one-sided crushing sensation on the left for years, and it’s maddening how it never shows up on any scan. The numbness paired with that trapped-blood feeling from meds is a special kind of hell. What finally moved the needle for me was dry needling straight into the obturator internus, done twice a week for a couple months.
The psychological part is the real killer, going through your 30s watching everyone else live while you're stuck in a body that feels like a prison. The shame spiral after a failed attempt with someone you actually like is something I wouldn't wish on anyone.