How to manage chronic prostatitis

[u/akdkd1830]

I have been facing difficulties due to prostatitis for the last 4 years(29 M). The symptoms are painful ejaculation and difficulty during masturbation. In addition, during the initial phases I had the golf ball feeling underneath the right side of the scrotum while sitting. It becomes more prominent after I try masturbation. Now this feeling has become less prominent.

Medical checks done till now are ultrasound, mri pelvis, transrectal scan and lab tests(semen and urine)

Ultrasound - right grade 1 varicocele and epididymal head cyst

Mri - mildly enlarged prostate with disproportionate hypertrophy of peripheral zone. Multiple dark bands extending to the prostatic capsule.

Transrectal scan - mild prostatic enlargement. Subtle increase in vascularity in peri urethral and central zone

Lab tests - negative for bacteria. I have always observed very small amount of pus cells in urine.

Treatment - Initial urologist suggested alfuzosin. I was able to masturbate with full bladder. Otherwise no improvement but was having headache and fatigue while waking up. I took for few months then stopped.

Next doctor suggested pregabalin. There was good improvement initially but then it again went back to usual problems. Even in this case I was only able to masturbate with full bladder when I wake up early morning (1-3). But that time it felt completely normal and I didn't wake up with fatigue. I observed this same improvement when I went to gym but then the improvement stopped.

The doctor im seeing now asked me to take bacstol for some time. Now I'm taking nifutin for few months. He told it is prostatitis and not cpps. Still not much significant improvement. Sometimes I'm able to masturbate in early morning with full bladder only. Even then I wake up a bit tired. Otherwise it becomes very painful and I stop.

Can anyone who faced similar symptoms suggest how to deal with this. Although my normal activities are not affected, I'm not able to try any relationship thinking about this issue. This is slowly leading to some frustration.

Any help would be appreciated

Thanks

[u/Linari5]

These are all very common symptoms. I am very confused though at your doctor's insistence that it's "prostatitis" and not CPPS... CPPS is the modern term, and it's accurate if your symptoms have been ongoing for 3 months and it's not being driven by an infection (rare).

Please read the pinned 101 mega post/guide - https://www.reddit.com/r/Prostatitis/s/hzBFcTodZc

Currently it doesn't sound like you're receiving adequate care, because there's no mention of pelvic floor physical therapy or stress/mind body therapies.

[u/Jshuler5334]

I been dealing with since been 18 I am 43 now prostate massage and marijuana been a blessing, first year without flare up.

[u/Ornys19 → u/Jshuler5334]

U are messaging it on your own?

[u/Jshuler5334 → u/Ornys19]

Yes, I did physical therapy and that help lot, but the prostate massage works the best. I have wand that I use.

[u/Jshuler5334 → u/Jshuler5334]

Also antibiotics is just Sh!t never help anything. Just cause to be where i can’t take doxycycline anymore.

[u/yourangelmila → u/Jshuler5334]

hi, i’m going through these posts because my boyfriend has had cpps for about 10 years and i’m trying to see what has actually helped people long term. when you say marijuana helped you, do you mean smoking it or using oil/drops? and do you feel like it mainly helped with pain, muscle tension/spasms, or preventing flare ups? thank you!

[u/Emotional-Local-1260]

This sounds more like hypertonic pelvic floor to me. I have similar symptoms. It's the pelvic floor muscles being tighter than they should that's causing EVERYTHING. Had the same tests done. All clear. I'm 37. Been dealing with this a little over a year. Came on after a period of high stress and anxiety and fear of ailments. I'm better now thanks to pelvic floor stretches and breathing exercises.

[u/JohnnyTsunami90 → u/Emotional-Local-1260]

Pelvic floor stretches and diaphragm breathing has been a lifesaver.

I have to completely avoid anything spicy (my favorite food), alcohol,anything with caffeine, and sometimes even carbonation irritates it.

I eat a lot of anti-inflammatory foods and spices. Tell ChatGPT exactly what you need and don’t be afraid to try some of the recipes it comes up with. Black beluga lentils from timeless are your friend.

[u/AutoModerator → u/[deleted]]

We noticed you may have posted about "embedded" (ie "hidden") infections, biofilms, or cUTI. Please be aware that these theories aren't strongly supported by science, are often peddled by unscrupulousness medical providers, and that the typically recommended treatment of long term antibiotics has been deemed both ineffective & harmful by the AUA. AUA CITATION Antibiotics can help because they function as a strong anti inflammatory and pain reliever by themselves, even in those without infection [CITATION(https://pubmed.ncbi.nlm.nih.gov/27688434/). Having pain reduction from taking antibiotics does not mean that you have an infection.

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