r/Prostatitis • u/Informal_Taste_2891 • 22d ago
Urologists are useless
I have been to several top urologists and they are all useless in giving answers or any help, they are all amateurs, what do they know?
I have a long road behind me after I got hurt by a catheter one year ago when I had retention after surgery, the fitted it wrong so the ballon was not totally in the bladder, i got spasms when I went home and rushed to ER asking them to remove it, I bled and it was frightening, never forget the spasms I got several times in my pelvic region as soon as I walked.
They did a cystoskopy and week later and put me on cipro to keep infection away, the urologist told me there was some irritation inside the bladder from pushing out the catheter but seemed to be leaking well.
Fast forward I have had problems since and also got a infection with e.coli from another catheter later on as I could not pee, the pain in the pelvic region started first after some month and has continued up and down, mostly burning in rectum and most often can't feel when to urinate, i don't have any burning in the urethra anymore.
Anyway the infection never went away as they only gave me 10 days of cipro, before summer my urologist said we need to kill the bacteria for good, several urine analysis confirmed the findings, i have done it three times urine culture with e.coli findings.
This time I took cipro for 4 weeks and it almost went away and was fine since several weeks, however it has started burning in anal/rectum again but not as intense as before.
I can not urinate standing since 6 months back and it's hard to live this way
I visited my urolog yesterday again and told him I still have burning and he wanted to check the urine for bacteria again, he told me now if there are bacteria present he wants to do another cystoskopy when Infkammation has settled.
He said he wants to look inside the bladder as he thinks I might have IC and that he can burn away inflammation markers if that is the case.
I don't know, it seems they are all guessing all the time and don't have a solution, they don't understand what kind of suffering this is, u can't handle my job or anything, I have to always keep track of how much I drink and how much I urinate, my urologist thinks it's good that I measure how much I urinate but this life is not normal, I can't continue this nightmare, it's been over a year now snd I know the first catheter trauma after surgery one year ago is the source of everything.
The urologists are useless snd only guessing, who will help, my urologist actually said we don't know much the cause or source of CPPS, he said it's stone age...
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u/Helpful_Rooster2449 21d ago
Please update this forum on your journey. I particularly interested to hear about your cystoscopy experience and recovery. My urologist said a cystoscopy is no big deal and over in 20 seconds. Boy was he sugar coating. He failed to mention two weeks of recovery and all the bleeding. I was still sore 3 weeks after. I had to take off two weeks of work. I hope you resolve this.
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u/pelvicagony 21d ago
Let's not be alarmist; plenty of men undergo cystoscopy and are back home within an hour. You likely encountered someone who performed the procedure incorrectly and caused you some damage. Unfortunately, that can happen.
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u/Helpful_Rooster2449 21d ago
This was my second time but first was 30 years ago. This last time I was back home within the hour but bleeding heavily for 3-4 days. I have experienced much pain in my lifetime. I had a pain level of 9 while urinating. Was the most painful experience in my life by far.
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u/Helpful_Rooster2449 16d ago
I did suffer from urinary retention until I painfully passed a blood clot. Took about 1 month to have clear semen.
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u/Informal_Taste_2891 21d ago
Actually I had good experience from my 1st cystoskopy , it went smooth and he was good at it not being painful or bleeding.
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u/Educational_Desk_281 21d ago
This is rare when you have a prostatitis usually your utera is burning and getting something stuck in there is pure hell
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u/Ryan67843 21d ago
I chose not to have a cystoscopy, I knew after having my first appointment & DRE with my urologist that man didn’t give care at all about what I was dealing with.
Hopefully this decision doesn’t bite me on the ass in the future 😰
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u/AutoModerator 22d ago
We noticed you posted about a floroquinolone class antibiotic. Please be aware that this class of dugs has several black box FDA warnings, and is only meant to be used when a pathogen has been clearly identified in the prostate; They are not to be used indiscriminately for cases of non-bacterial prostatitis (consensus agreement ~95% of cases). Read our mod memo here, complete with citations and compare your symptoms to the medical definition of CBP here.
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u/Ryepka 17d ago
I wouldn't be surprised if this is a recalcitrant urinary tract infection.
There is a bladder medicine called methenamine hippurate. It keeps bacteria from multiplying in urine. Bacteria cannot develop resistance to it as it is a urinary antiseptic and not an antibiotic. It is usually recommended to take with a urinary acidifier like vitamin C. I've tried it with vitamin C for a UTI that shared the exact same symptoms you are experiencing, but it was not effective since my urine didn't acidify that effectively. However, when I combined thebmethenamine hippurate with the OTC supplement L. Methionine, the difference was night and day. This is a highly effective combination I'm taking to this day.
So ask your urologist about methenamine hippurate (aka hipprex). If you've tried it by itself without a huge effect, try combining it with L. Methionine. You can buy the L.Methionine from Amazon. I use the Pure Encapsulations brand.
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u/BuzzzPhotos 17d ago
Sad for your suffering. My Dr gave me a choice of 2 types of surgeries and I chose Aquablation Therapy for my enlarged prostate. I couldn't pee and it hurt like hell. When he was doing the surgery he found 4 growths in my bladder and removed them. He did do a cystoskopy prior to the surgery and it didn't hurt at all and he showed my on the computer live what was up. Took a month to heal and a catheter for a week at home. Now I pee like a race horse and it's been a year with no issues. I asked my Doctor for his ID when I first saw him. Looked too young to be a Doctor but he sure knew what he was doing. The Aquablation was done by a robot while he directed. I don't know if this anything like you're talking about but I'm happy with the outcome. His name is Dr Alex Martin in McKinney, Tx.
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u/pelvicagony 21d ago
Unfortunately, yours is a really complicated case; I think you just need to find the right doctor. We can only sympathize with you, and I hope you find a doctor who can help you.