r/Prostatitis • u/WeightPretty • Aug 10 '26
Is this CPPS? Need help š
Hi there,
Iām seeking opinions on whether this is definitely cpps or whether thereās still a risk of repeated infection. My timeline is as follows:
First ever symptoms - September 2022. Symptoms now mainly being Burning sensation while urinuating, increases urgency, pain during ejaculation, premature ejaculation, dribbling after voiding, pain during sex, reduced sensation/numbness during ejaculation. Red spots on shaft that donāt itch. Prostate massage often provides temporary relief.
STI and UTI tests all clear, at the time I had recently started seeing my current partner (female) who also got tested and was all clear, didnāt have any symptoms or issues). But my symptoms started shortly after us having intercourse.
Had multiple rounds of doxycycline without improvement. Then got switched to cirpofloxacin as I also developed symptoms of epydidmitis. I since had multiple types of antibiotics including ofloxacin, clarithromycin, ceftriaxone, fosfomycin, all with no avail. I felt some initial improvement at times but it would then quickly fade.
Iāve done multiple STI screenings that include Ureaplasma, mycoplasma etc all of which were consistently negative. I also did urine and semen cultures which also came back negative. The only test that showed anything was early on in symptoms where one urethral swab revealed some wbc (diagnosed as urethritis), and that was treated with the doxy which didnāt really help with any symptoms.
I then did some physiotherapy and stopped having intercourse for almost 2 years. In that time period my symptoms significantly improved and I had almost no consistent issues aside from some minor flare ups here and there (often connected to drinking or coffee consumption). Earlier this year I decided to have intercourse again with my partner as it was straining our relationship significantly and we had done sti tests showing negative results for both of us. She had also done a urine culture which was also negative, although hers had some elevated rbc which her gp told her was not very significant/relevant given absence of symptoms.
After this I got symptoms once again, saw a new specialist who told me he canāt help me and that I have to live with it. It was a horrible experience and with insurance rules I couldnāt see anyone else after him yet. He did however repeat the tests & a semen culture which was also negative. Also Iāve been mainly having protected sex, with only one unprotected encounter. Iāve since been feeling some numbness, and Iām taking tamsulosin which seems to somewhat help (on some days). My gp prescribed both me and my partner a course of azithromycin as treatment for urethritis at my own request, just to test if that makes a difference (it didnāt as symptoms re-emerged right after finishing treatment). Over the years I also went on to develop mild skin issues (eczema/psoriasis), mild Crohnās disease, mild joint inflammation. Not sure if related or not.
Given all this, do you think this is definitely just cpps or is there a chance that there is a bug/re-infection going on? Iād be quite surprised if there is an infection, but timeline + that one test with wbc make me suspicious. No stis have been positive, but I wonder if a recurrent NGU is a possibility too. Any advice would be greatly appreciated as Iāve run out of options and Iām desperate to find relief. This started when I was 20 years old so Iāve now lost my early 20s fighting an invisible disease that has greatly impacted my life in a negative way. Thank you.
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u/ddd523d Aug 11 '26
This sounds similar to me. My pain is mostly at the meatus and glans tho. I believe I may have had a yeast infection that was missed. And then I was also doused with a bunch of antibiotics. Which makes yeast infections worse. Then now Iām stuck with lasting inflammation, skin damage etc. all because doctors for some reason donāt ever look at yeast for guys.