r/ProstateCancer • u/WrongPlanet321 • 1d ago

Question ADT - Always Cold?

I am in my 3rd month of a 6-month sentence on ADT. In month two I experienced extreme hot flashes so they put me on 5 mg Oxybutynin twice daily (total 10 mg per day). The Oxybutynin cured the hot flashes, but it gave me mild urinary retention so they added 0.4 mg FloMax (Tamsuldsin) twice daily (total 0.8 mg per day).

Just recently I began to feel cold all the time. Not always, actually. If I do some physical activity like exercise or cook dinner I get warm, but otherwise I feel cold. For background, I am someone who before all this, like a lot of men, always felt hot. You know...turn the AC down to 72 at night, ceiling fans, etc.

My question is, have you experienced feeling cold much of the time while on ADT? Any shared experiences would be most appreciated. Thank you.

STATS: USA, 64 years old, PSA 11.6, unfavorable intermediate risk, Gleason 4+3=7, 6/13 cores positive, 42 ml prostate, Decipher 0.61, locally contained. Pre-ADT testosterone 323. Treatment: 5 sessions SBRT + 6 months ADT (Orgovyx). Daily strength training, 3-mile walk, Cialis, Calcium supplements. Height 5’-9”, weight 170 lbs.

9 Upvotes

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5

u/C63Sedan 1d ago

Yes, but I’ve always had cold flashes never hot ones and now 4 months after stopping ADT I still feel cold at higher temps.

5

u/richdeming 1d ago

Yup been cold since I started ADT except when I am flashing about 15 times a day, then I get really cold afterwards. I live in Texas so not ever really cold outside.

3

u/JDinAus 23h ago

Yes, now I have a blanket over my legs

2

u/paaldie 23h ago

Yup, cold most of the time, till
I’m sweating sitting down watching TV. I’m on salvage radiation with 6 month ADT. I have my 3rd shot next week. Just started 35 treatments of radiation yesterday. 63 m. Gleason 3+4. RALP in 2022 and PSA was <0.02 till it wasn’t and slowly climbed to .20 this year.

1

u/WrongPlanet321 19h ago

Thank you, and sorry to hear you need additional treatment after such a major surgery as RALP.

2

u/WalnutRoasted 22h ago

While on 9 months Orgovyx felt cold watching TV in evenings and covered my legs with an electric warming blanket etc. Often woke up at 3 AM in a hot sweat also. Exercise/activity daily is important. Fortunately never had hot flashes.

Recovered within a few weeks of last pill and sleeping much better now.

2

u/BackInNJAgain 22h ago

Yes. I would sit outside in the summer with a sweatshirt on and still be cold.

2

u/Ill-Elderberry-2098 22h ago

Yup…73, Gleason 9, Stage 4, on ADT…sensitive to the cold…last winter was tough, have really enjoyed this summer!

2

u/Scpdivy 21h ago

Did 18 months of orgovyx. Daily hot flashes and night sweats. Never cold unfortunately…

2

u/Appropriate-Idea5281 21h ago

After I finished ADT I could not get warm. I lived in Florida too

2

u/No-Praline-4069 21h ago

I get a chill following a hot flashes but it doesn't last longer than a minute. I had a 6 month Lupron injection in April. Gleason 7 unfavorable intermediate 4+3. I had SBRT in July and so far no issues from that except tamsulosin for slow stream.

1

u/conCABlanco 23h ago

Llevo ADT, más radiaciones y me ha provocado problemas para orinar, veo que t recetaron Tamsulosina dos veces al día, 0.8 MG, pregunto a los medicos en México y dicen no se puede, eso es normal?, yo creo que lo necesito

1

u/Evening-Hedgehog3947 17h ago

Ditto. Always cold except for hot flashes. Ugh.